Program areas at Sickle Cell 101
Sickle cell 101 leverages data-driven educational initiatives and campaigns via its digital platforms, catering to over 60,000 users worldwide, offering patient-friendly community education, outreach, and engagement.
Sickle Cell 101 collaborates with various global stakeholders in the sickle cell landscape, including research institutes, medical centers, and pharmaceutical and biotech companies, as well as patient advocacy groups and advocates.
Sickle Cell 101 utilizes community-driven data generation and analytics, capturing global patient experiences and real-time community insights to bolster research initiatives.
Who funds Sickle Cell 101
Grants from foundations and other nonprofits
Personnel at Sickle Cell 101
| Name | Title | Compensation | Date of data |
|---|
| Cassandra Trimnell | President | | 2022-11-30 |
| Cassandra Trimnell-Ehrlich | Executive Director | | 2024-05-29 |
| Shawna Barnes | Key Employee | $38,777 | 2022-11-30 |
| Stephen Agyenim Boateng | Director of Research and Developmen / Director of Research and Engagement | $12,750 | 2021-11-30 |
| Cassandra Trimnell Ehrlich | Past Executive Director | $38,800 | 2023-11-30 |
| ...and 4 more key personnel |
Financials for Sickle Cell 101
| Revenues | FYE 11/2023 | FYE 11/2022 | % Change |
|---|
| Total grants, contributions, etc. | $349,501 | $246,717 | 41.7% |
| Program services | $0 | $0 | - |
| Investment income and dividends | $0 | $0 | - |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $0 | $0 | - |
| Net income from fundraising events | $0 | $0 | - |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $0 | $0 | - |
| Total revenues | $349,501 | $246,717 | 41.7% |
Organizations like Sickle Cell 101
| Organization | Type | Location | Revenue |
|---|
| Sickle Cell Consortium | 501(c)(3) | Cumming, GA | $686,666 |
| Gateway Hemophilia Association | 501(c)(3) | Saint Louis, MO | $374,624 |
| Association for the Severely Handicapped (TASH) | 501(c)(3) | Washington, DC | $1,063,897 |
| Foundation for Sarcoidosis Research (FSR) | 501(c)(3) | Chicago, IL | $1,673,599 |
| Hemophilia Alliance of Maine | 501(c)(3) | Brewer, ME | $189,131 |
| Gold Coast Down Syndrome Org | 501(c)(3) | Boca Raton, FL | $433,795 |
| Pipers Angels Foundation | 501(c)(3) | North Palm Beach, FL | $760,519 |
| Bleeding Disorders Alliance Illinois | 501(c)(3) | Chicago, IL | $448,700 |
| Down Syndrome Association of Central Florida | 501(c)(3) | Winter Park, FL | $639,623 |
| Hemophilia Council of California | 501(c)(3) | Sacramento, CA | $333,152 |
Data update history
July 20, 2024
Used new vendors
Identified 1 new vendor, including
September 23, 2023
Received grants
Identified 1 new grant, including a grant for $6,000 from Be the Match August 21, 2023
Used new vendors
Identified 3 new vendors, including , , and
August 19, 2023
Posted financials
Added Form 990 for fiscal year 2021
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Political advocacyConducts researchTax deductible donationsNo full-time employeesAccepts online donations
General information
- Address
- 760 Newhall Dr Suite 1085
- San Jose, CA 95110
- Metro area
- San Jose-Sunnyvale-Santa Clara, CA
- County
- Santa Clara County, CA
- Website URL
- sc101.org/Â
- Phone
- (415) 881-7101
IRS details
- EIN
- 46-4141467
- Fiscal year end
- November
- Taxreturn type
- Form 990
- Year formed
- 2013
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G20: Birth Defects and Genetic Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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