EIN 83-1415567

Slc6a1 Connect

IRS 501(c) type
501(c)(3)
Num. employees
1
City
State
Year formed
2018
Most recent tax filings
2023-12-01
Description
Slc6a1 Connect is a patient advocacy group that strives to improve the lives of children and families who have been affected by the Slc6a1 mutation. The organization's mission is to increase awareness and raise funds that can be used to advance scientific research, with the ultimate goal of developing a cure for this rare neurological disease.
Total revenues
$676,629
2023
Total expenses
$1,264,542
2023
Total assets
$2,299,269
2023
Num. employees
1
2023

Program areas at Slc6a1 Connect

Slc6a1 Connect supports targeted research and provides funding to research institutions to quickly advance the development of treatments and ultimately a cure for Slc6a1.
Slc6a1 Connect carried out an international scientific symposium and family conference in november 2023. The international scientific symposium includes a full day of clinical updates, scientific presentations and protocols, the latest research, family testimonials and an engaging panel discussion on clinical trial readiness.

Grants made by Slc6a1 Connect

GranteeGrant descriptionAmount
Nationwide Children's HospitalThe Purpose of the Grants Are To Advance Scientific and Clinical Efforts To Advance the Cure of Slc6a1.$393,411
Children's Hospital Colorado FoundationThe Purpose of the Grants Are To Advance Scientific and Clinical Efforts To Advance the Cure of Slc6a1.$72,040
University of Montana FoundationThe Purpose of the Grants Are To Advance Scientific and Clinical Efforts To Advance the Cure of Slc6a1.$54,500
...and 5 more grants made

Who funds Slc6a1 Connect

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
PayPal Giving Fund$68,664
American Online Giving FoundationGeneral Support$32,614
Simons FoundationSlc6a1 Connect Gift$10,000
...and 7 more grants received

Personnel at Slc6a1 Connect

NameTitleCompensation
Amber FreedChief Executive Officer$0
Dan HouseDirector of Engagement$0
Kimberly FryVice President$0
Chantal PittmanPatient Advocate$0
Kelsey PiroSecretary and Treasurer$0
...and 2 more key personnel

Financials for Slc6a1 Connect

RevenuesFYE 12/2023
Total grants, contributions, etc.$526,043
Program services$59,500
Investment income and dividends$83,242
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$7,844
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$676,629

Form 990s for Slc6a1 Connect

Fiscal year endingDate received by IRSFormPDF link
2023-122024-11-13990View PDF
2022-122023-06-05990View PDF
2021-122022-02-21990View PDF
2020-122021-05-26990View PDF
2019-122020-10-08990View PDF
...and 2 more Form 990s
Data update history
January 16, 2025
Posted financials
Added Form 990 for fiscal year 2023
October 24, 2024
Received grants
Identified 2 new grant, including a grant for $5,000 from Tatar Family Foundation
July 11, 2024
Received grants
Identified 7 new grant, including a grant for $89,542 from PayPal Giving Fund
November 25, 2023
Posted financials
Added Form 990 for fiscal year 2021
October 23, 2023
Received grants
Identified 9 new grant, including a grant for $50,000 from Silicon Valley Community Foundation (SVCF)
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Political advocacyProvides grantsConducts researchPartially liquidatedCommunity engagement / volunteeringTax deductible donationsAccepts online donations
General information
Address
1939 Temperence Hill Dr
Frisco, TX 75034
Metro area
Dallas-Fort Worth-Arlington, TX
County
Denton County, TX
Website URL
slc6a1connect.org/ 
Phone
(303) 907-8038
IRS details
EIN
83-1415567
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2018
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G80: Specifically Named Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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