Solve Me CFS Initiative

Research programs - the organization has developed and operates the database platform registry and biobank, an open-sourced research tool it developed that is designed to help advance the research and development of diagnostics and treatments for me/cfs. The organization provided curated research updates by email to approximately 35,000 constituents and continued to expand the database platform registry creating the worlds largest longitudinal me/cfs and long covid database, with nearly 7,000 participants enrolled. Initiated transition to Solve together, state-of-the-art, patient-driven data platform to enable recruitment for clinical studies. Database platform enrolled participants for 2 biomarker studies with external collaborators. The organization also provides scientific research grants for scientists and doctors to find causes and ways to treat and cure post infection diseases like me/cfs and long covid. During the year ended june 30, 2023, the organization awarded ramsay research grants to 6 scientists at organizations in the us, netherlands, and the uk, cont. On sch. O

Advocacy and communication. The organization works with the us congress to increase funding for me/cfs research by the national institute of health nih, center for disease control cdc and the department of defense. During the year ended june 30, 2023, more than 350 advocates participated in over 220 virtual meetings with members of congress and their staff and over 6,300 virtual connections were made in support of the organizations advocacy goals. In addition, the organization launched a major national awareness campaign. Developed a tv and radio public service announcement psa describing long covid symptoms. With support from the entertainment business foundation eif and donated air time, the psa segment was broadcasted 173,000 times in 2,200 media outlets during the year, to a total audience exposure of 1 billion people. The organization also continued to lead the long covid alliance that the organization co-founded, delivering monthly meetings to a coalition of approximately 1,000 long covid and associated conditions organizations and individuals from cont on sch. O