Program areas at Sophie's Hope Foundation
The organization worked to spread awareness about glycogen storage disease 1b (gsd 1b) and raise critical funds which will be used for patient advocacy initiatives, distributed to organizations working to find a cure or to support the collaboration of patients, caregives, doctors, researchers and drug companies.
The organization collaborated with the global center for gsd on the gsdvalue project, which has a desired outcome of establishing a global standard of care for hepatic gsd.
Grants made by Sophie's Hope Foundation
| Grantee | Grant description | Grant year | Amount |
|---|
| Duke University | Duke Retrospective Natural History Study | 2022-12 | $37,538 |
Who funds Sophie's Hope Foundation
Grants from foundations and other nonprofits
Personnel at Sophie's Hope Foundation
| Name | Title | Compensation | Date of data |
|---|
| Jamas Lafreniere | President | $0 | 2024-02-14 |
| Brett Adamczyk | Treasurer | $0 | 2023-12-31 |
| Joseph Barberio | Clerk | $0 | 2023-12-31 |
Financials for Sophie's Hope Foundation
| Revenues | FYE 12/2023 | FYE 12/2022 | % Change |
|---|
| Total grants, contributions, etc. | $274,858 | $100,715 | 172.9% |
| Program services | $0 | $0 | - |
| Investment income and dividends | $6,939 | $1,951 | 255.7% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $0 | $0 | - |
| Net income from fundraising events | $47,611 | $149,734 | -68.2% |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $0 | $0 | - |
| Total revenues | $329,408 | $252,400 | 30.5% |
Organizations like Sophie's Hope Foundation
| Organization | Type | Location | Revenue |
|---|
| Diabetes Association | 501(c)(3) | Fall River, MA | $218,700 |
| Parkinson Association of Central Florida | 501(c)(3) | Winter Park, FL | $412,844 |
| Romito Foundation | 501(c)(3) | Firestone, CO | $83,975 |
| Lupus Foundation of Northern California | 501(c)(3) | San Jose, CA | $243,518 |
| Prader-Willi Syndrome Association of Colorado | 501(c)(3) | Littleton, CO | $107,145 |
| Seneca Diabetes Foundation | 501(c)(3) | Irving, NY | $167,496 |
| The Ella Foard Foundation for Rett Syndrome | 501(c)(3) | Charlotte, NC | $93,563 |
| Shaun Ohara Foundation | 501(c)(3) | Hillsborough, NJ | $210,371 |
| KDM5C KARES Foundation | 501(c)(3) | Metamora, IL | $94,122 |
| Brendon Mclarty Memorial Foundation | 501(c)(3) | Oklahoma City, OK | $141,129 |
Data update history
June 5, 2024
Posted financials
Added Form 990 for fiscal year 2023
November 25, 2023
Posted financials
Added Form 990EZ for fiscal year 2020
August 12, 2023
Posted financials
Added Form 990 for fiscal year 2021
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchFundraising eventsFundraising races, competitions, and tournamentsTax deductible donationsNo full-time employeesAccepts online donations
General information
- Address
- 23 Briarcliff Dr
- Hopkinton, MA 01748
- Metro area
- Boston-Cambridge-Newton, MA-NH
- County
- Middlesex County, MA
- Website URL
- sophieshopefoundation.org/Â
- Phone
- (508) 341-4027
IRS details
- EIN
- 84-5014314
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 2020
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G80: Specifically Named Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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