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EIN 43-1568496

Sotos Syndrome Support Association

IRS 501(c) type
501(c)(3)
Num. employees
Unknown
City
Wheaton
State
Illinois
Year formed
1991
Most recent tax filings
2023-12-01
NTEE code, primary
G80: Specifically Named Diseases
Description
The Sotos Syndrome Support Association provides support and education for families affected by Sotos Syndrome. They offer online registration for conferences, newsletters, educational information, and resources for family members, doctors, teachers and professionals dealing with the syndrome. These services are utilized by over 300 members throughout the year.
Also known as...
C-O Jean Neshek-Dowe
Total revenues
$64,185
2023
Total expenses
$97,804
2023
Total assets
$225,823
2023
Num. employees
n/a

Who funds Sotos Syndrome Support Association

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Schwab Charitable FundHealth$8,000
AmazonSmile FoundationGeneral Support$888
Pfizer FoundationMatching Gifts$200
...and 1 more grant received

Personnel at Sotos Syndrome Support Association

NameTitleCompensation
Michelle MercadoPresident and Director$0
Linnea DuganDirector$0

Financials for Sotos Syndrome Support Association

RevenuesFYE 12/2023
Total grants, contributions, etc.$34,741
Program services$28,291
Membership dues$6,600
Investment income and dividends$708
Net gain from sale of non-inventory assets$0
Net income from gaming activities and fundraising events, combined$0
Net income from sales of inventory$0
Miscellaneous revenues$445
Total revenues$64,185

Form 990s for Sotos Syndrome Support Association

Fiscal year endingDate received by IRSFormPDF link
2023-122024-05-20990EZView PDF
2022-122023-04-27990EZView PDF
2021-122022-05-13990EZView PDF
2020-122021-05-11990EZView PDF
2019-122021-08-16990EZView PDF
...and 4 more Form 990s

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Diabetes Association of Pierce CountyTacoma, WA$174,280
Romito FoundationFirestone, CO$83,975
Blue Caboose Childrens FundMckinney, TX$60,876
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Data update history
November 25, 2023
Posted financials
Added Form 990EZ for fiscal year 2021
August 8, 2023
Posted financials
Added Form 990EZ for fiscal year 2020
July 6, 2023
Posted financials
Added Form 990EZ for fiscal year 2022
May 20, 2023
Updated personnel
Identified 6 new personnel
May 12, 2023
Used new vendors
Identified 1 new vendor, including
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
MembershipsConducts researchPartially liquidatedTax deductible donationsNo full-time employeesAccepts online donations
General information
Address
PO Box 4626
Wheaton, IL 60189
Metro area
Chicago-Naperville-Elgin, IL-IN-WI
County
DuPage County, IL
Website URL
sotossyndrome.org/ 
Phone
(888) 246-7772
IRS details
EIN
43-1568496
Fiscal year end
December
Taxreturn type
Form 990-EZ
Year formed
1991
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G80: Specifically Named Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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