South Central Pennsylvania Sickle Cell Council

Maintaining the unified care plan throughout the region specific to individuals with SCD. Providing and developing case management data, tracking and maintenance of data specific to all individuals within the Sickle Cell Disease population. Education and awareness for all age groups with Sickle Cell Disease and for their family. Providing support groups designed to establish a strong support network for those affected by Sickle Cell Disease. These groups include Sickle Cell parents, caregivers, and frontline workers in the region.

Circulating interest and educating individuals on the need to participate in blood donor drives and screening for the sickle cell trait. Hosting podcasts, blogs, surveys, and attending fairs and community events to promote awareness.

Education and awareness for the teenagers and young adults with SCD who are transitioning to adult care systems. To help these groups with sickle cell disease (SCD) by increasing and improving the understanding of disease knowledge, increasing independent self-care practices, improved self advocating and communication with healthcare providers, and the ability to navigate the complex adult care systems. This is accomplished through pediatric/young adult age specific groups which include educational sessions, activities, and discussion groups on the specific challenges.