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EIN 01-0759380

Spinal Muscular Atrophy Foundation

IRS 501(c) type
501(c)(3)
Num. employees
3
City
Jackson
State
Wyoming
Year formed
2003
Most recent tax filings
2023-12-01
NTEE code, primary
T20: Private Foundations
Description
To accelerate the development of a treatment for SMA, the number one genetic killer of infants and toddlers. The SMA Foundation was established in 2003 by Loren Eng and Dinakar Singh, parents of a child with SMA.
Total revenues
$12,507,750
2023
Total expenses
$3,641,528
2023
Total assets
$33,691,989
2023
Num. employees
3
2023

Program areas at Spinal Muscular Atrophy Foundation

See statement 9
The Foundation has agreements in place with third parties to assist in facilitating the Foundation research efforts. Under these agreements, with the aim of expediting research efforts, the Foundation is responsible for paying selected program expenses to the research institution or contractor directly. Revenue from these agreements are recognized when all conditions pertaining to the delivery of selected program expenses have been satisfied.

Who funds Spinal Muscular Atrophy Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
John and Jennifer Eckerson Family FoundationGeneral Unrestricted$1,000
F2 FoundationContinued Research To Cure Sma$1,000

Personnel at Spinal Muscular Atrophy Foundation

NameTitleCompensation
Karen S. ChenChief Executive Officer$737,500
Omar KhwajaChief Medical Officer
Loren A. EngPresident$0
Kelly Howell, PhDDirector$235,000
Dinakar SinghChairman of the Board$0

Financials for Spinal Muscular Atrophy Foundation

RevenuesFYE 12/2023
Total grants, contributions, etc.$52,414
Investment income and dividends$1,272,150
Net rental income$0
Net gain from sale of non-inventory assets$0
Gross sales of inventory$0
Miscellaneous revenues$11,183,186
Total revenues$12,507,750

Form 990s for Spinal Muscular Atrophy Foundation

Fiscal year endingDate received by IRSFormPDF link
2023-122024-11-15990PFView PDF
2022-122023-11-15990PFView PDF
2021-122022-11-15990PFView PDF
2020-122021-11-15990PFView PDF
2019-122021-06-11990PFView PDF
...and 9 more Form 990s

Organizations like Spinal Muscular Atrophy Foundation

OrganizationLocationRevenue
Kenneth Rainin FoundationOakland, CA$9,404,948
The Greater Clark Foundation (GCF)Winchester, KY$12,259,630
The CIRI Foundation (TCF)Anchorage, AK$4,765,798
The Cameron FoundationPetersburg, VA$9,047,455
Guthy-Jackson Charitable FoundationBeverly Hills, CA$4,988,091
North Penn Community Health Foundation (NPCHF)Colmar, PA$3,908,001
Stoller FoundationHouston, TX$6,914,405
Wexner FoundationNew Albany, OH$10,927,166
Montana Healthcare Foundation (MHCF)Bozeman, MT$41,465,932
Blandin FoundationGrand Rapids, MN$21,665,350
Data update history
November 8, 2024
Updated personnel
Identified 3 new personnel
January 5, 2024
Posted financials
Added Form 990PF for fiscal year 2022
December 28, 2023
Received grants
Identified 2 new grant, including a grant for $25,000 from Harry & Jan Sweere Foundation
December 26, 2023
Used new vendors
Identified 1 new vendor, including
June 21, 2023
Posted financials
Added Form 990PF for fiscal year 2020
Nonprofit Types
Grantmaking organizationsPrivate foundationsCorporate foundationsPrivate non-operating foundationsCharities
Issues
No issues found
Characteristics
Provides grantsPartially liquidatedNational levelReceives government fundingTax deductible donationsAccepts online donations
General information
Address
970 W Broadway PMB 140 Ste E
Jackson, WY 83001
County
Teton County, WY
Website URL
smafoundation.org/ 
Phone
(646) 253-7100
IRS details
EIN
01-0759380
Fiscal year end
December
Taxreturn type
Form 990-PF
Year formed
2003
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
T20: Private Foundations
NAICS code, primary
813211: Grantmaking Foundations
Parent/child status
Independent
California AB-488 details
AB 488 status
May Operate or Solicit for Charitable Purposes
Charity Registration status
Current - Awaiting Reporting
FTB status revoked
Not revoked
AG Registration Number
121927
FTB Entity ID
9594490
AB 488 data last updated ("as-of") date
2024-12-31
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