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EIN 94-2781004

Support Organization for Trisomy 1813 - Soft

IRS 501(c) type
501(c)(3)
Num. employees
0
City
Rochester
State
New York
Year formed
1981
Most recent tax filings
2023-07-01
NTEE code, primary
G20: Birth Defects and Genetic Diseases
Description
Support Organization for Trisomy 1813 - Soft provides support, understanding, and encouragement to families of individuals with Trisomy 18/13. It also holds conferences and seminars to provide medical information regarding Trisomy 18/13 to families and professionals.
Also known as...
Support Organization for Trisomy 18 13 and Related Disorders Soft
Total revenues
$148,862
2023
Total expenses
$71,160
2023
Total assets
$574,986
2023
Num. employees
0
2023

Program areas at Support Organization for Trisomy 1813 - Soft

Conferences and seminars to provide medical information to families and professionals regarding Trisomy 18/13.
Newsletters, books, brochures, and research to increase public awareness.
Support organization to provide support, understanding, and encouragement to families of individuals with Trisomy 18/13.

Who funds Support Organization for Trisomy 1813 - Soft

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
ImpactAssetsGeneral Support$54,576
Saint Paul and Minnesota FoundationMultiple Grants for Multiple Purposes$10,000
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$6,450
...and 5 more grants received

Personnel at Support Organization for Trisomy 1813 - Soft

NameTitleCompensation
Barb VanherreweghePresident$0
Steve SoggeVice President$0
Debbie DyeDirector$0
Renae BradleyPresident$0

Financials for Support Organization for Trisomy 1813 - Soft

RevenuesFYE 07/2023
Total grants, contributions, etc.$136,509
Program services$4,930
Investment income and dividends$7,423
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$148,862

Form 990s for Support Organization for Trisomy 1813 - Soft

Fiscal year endingDate received by IRSFormPDF link
2023-072023-10-30990View PDF
2022-072022-12-09990EZView PDF
2021-072021-11-08990EZView PDF
2020-072021-06-03990EZView PDF
2019-072020-02-07990EZView PDF
...and 9 more Form 990s
Data update history
January 2, 2024
Received grants
Identified 1 new grant, including a grant for $1,568 from AmazonSmile Foundation
December 30, 2023
Posted financials
Added Form 990 for fiscal year 2023
December 29, 2023
Updated personnel
Identified 7 new personnel
December 24, 2023
Received grants
Identified 2 new grant, including a grant for $54,576 from ImpactAssets
November 25, 2023
Posted financials
Added Form 990EZ for fiscal year 2022
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchPartially liquidatedState / local levelTax deductible donationsNo full-time employees
General information
Address
2982 S Union St
Rochester, NY 14624
Metro area
Rochester, NY
County
Monroe County, NY
IRS details
EIN
94-2781004
Fiscal year end
July
Taxreturn type
Form 990
Year formed
1981
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G20: Birth Defects and Genetic Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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