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EIN 47-2459997

Syngap1 Foundation

IRS 501(c) type
501(c)(3)
Num. employees
1
City
Washington
State
District of Columbia
Year formed
2014
Most recent tax filings
2022-12-01
NTEE code, primary
G20: Birth Defects and Genetic Diseases
Description
Syngap1 (mrd5) natural history study registry: to conduct a prospectively- planned and efficient natural study history that will result in the most comprehensive understanding of the disease and its course and pace over time.
Also known as...
Bridge the Gap - Syngap Education and Research Foundation
Total revenues
$69,941
2022
Total expenses
$103,330
2022
Total assets
$4,757
2022
Num. employees
1
2021

Program areas at Syngap1 Foundation

Syngap1 (mrd5) natural history study registry: to conduct a prospectively- planned and efficient natural study history that will result in the most comprehensive understanding of the disease and its course and pace over time.
Syngap1 awareness: to use resources we receive to network with patient families and to engage the health and regulatory industries, as well as other patient organizations, to broaden the knowledge of Syngap1 syndrome.
Syngap1 family meet-ups: to empower the patient group's role in driving Research.

Grants made by Syngap1 Foundation

GranteeGrant descriptionAmount
Kennedy Krieger InstituteSee SCH I Supplement$25,000

Who funds Syngap1 Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
AmazonSmile FoundationGeneral Support$571

Personnel at Syngap1 Foundation

NameTitleCompensation
Matt TorescoChief Commercial Officer$0
Monica Dudley WeldonPresident$30,000
Elizabeth SachnoffClinical Project Director$0
Katy KennedySecretary$0
Candice TaylorPast Treasurer$0

Financials for Syngap1 Foundation

RevenuesFYE 12/2022
Total grants, contributions, etc.$59,820
Program services$0
Membership dues$0
Investment income and dividends$0
Net gain from sale of non-inventory assets$0
Net income from gaming activities and fundraising events, combined$2,829
Net income from sales of inventory$7,292
Miscellaneous revenues$0
Total revenues$69,941

Form 990s for Syngap1 Foundation

Fiscal year endingDate received by IRSFormPDF link
2022-122023-11-12990EZView PDF
2021-122022-08-12990View PDF
2020-122021-11-15990EZView PDF
2019-122021-04-05990View PDF
2018-122019-11-15990View PDF
...and 1 more Form 990
Data update history
January 24, 2024
Updated personnel
Identified 1 new personnel
January 17, 2024
Posted financials
Added Form 990EZ for fiscal year 2022
January 17, 2024
Updated personnel
Identified 8 new personnel
November 25, 2023
Posted financials
Added Form 990 for fiscal year 2021
June 21, 2023
Posted financials
Added Form 990EZ for fiscal year 2020
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchPartially liquidatedFundraising eventsNational levelReceives government fundingAuction fundraisersFundraising races, competitions, and tournamentsTax deductible donations
General information
Address
1012 14th St NW - Suite 500
Washington, DC 20005
Metro area
Washington-Arlington-Alexandria, DC-VA-MD-WV
County
District of Columbia, DC
Website URL
syngap1foundation.org/ 
Phone
(240) 347-0302
IRS details
EIN
47-2459997
Fiscal year end
December
Taxreturn type
Form 990-EZ
Year formed
2014
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G20: Birth Defects and Genetic Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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