Program areas at T1D Exchange
T1D Exchange maintains three key programs, the quality improvement collaborative, the T1D Exchange registry, and custom research services. The T1D Exchange quality improvement collaborative consists of a learning collaborative comprised of diabetes centers from across the us, and a companion data platform integrating emr data to redefine best practices, enhance the quality of care, and ultimately generate better outcomes. The T1D Exchange registry is an online virtual registry comprised of individuals with type 1 diabetes and/or their caregivers who participate in research. Registry participants provide patient-reported information on their care and management of diabetes. Finally, T1D Exchange provides custom research services that combine its analytics with additional offerings such as custom surveys, interviews, focus groups, device data integration, etc. This model helps connect patients, providers, industry and academia so that innovation is accelerated and care is optimized.
Who funds T1D Exchange
Grants from foundations and other nonprofits
Personnel at T1D Exchange
| Name | Title | Compensation | Date of data |
|---|
| David Walton | Chief Executive Officer | $418,563 | 2024-10-22 |
| Rebecca Parkes | Chief Operating Officer / Chief Advancement Officer | $130,339 | 2021-12-31 |
| Osagie Ebekozien | Chief Medical Officer | $299,238 | 2024-10-15 |
| Campbell Rowe | Vice President , Product Development and Data | $260,914 | 2021-12-31 |
| Wendy Wolf | Vice President of Registry | $265,811 | 2023-12-31 |
| ...and 16 more key personnel |
Financials for T1D Exchange
| Revenues | FYE 12/2023 | FYE 12/2022 | % Change |
|---|
| Total grants, contributions, etc. | $1,424,282 | $17,228,577 | -91.7% |
| Program services | $2,647,898 | $2,280,613 | 16.1% |
| Investment income and dividends | $202,912 | $29,563 | 586.4% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $0 | $0 | - |
| Net income from fundraising events | $0 | $0 | - |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $0 | $0 | - |
| Total revenues | $4,275,092 | $19,538,753 | -78.1% |
Organizations like T1D Exchange
| Organization | Type | Location | Revenue |
|---|
| The Max Foundation | 501(c)(3) | Seattle, WA | $7,085,779 |
| Health Care Improvement Foundation (HCIF) | 501(c)(3) | Philadelphia, PA | $2,445,864 |
| NeedyMeds | 501(c)(3) | Gloucester, MA | $1,800,949 |
| KFMC Health Improvement Partners | 501(c)(3) | Topeka, KS | $8,616,691 |
| Sunshine Foundation | 501(c)(3) | Southampton, PA | $2,073,513 |
| Monitor My Health | 501(c)(3) | Hamden, CT | $1,207,157 |
| Spring Point Project | 501(c)(3) | Minneapolis, MN | $3,706,775 |
| COTA - Children's Organ Transplant Association | 501(c)(3) | Bloomington, IN | $9,250,452 |
| Encourage Kids Foundation | 501(c)(3) | New York, NY | $1,527,640 |
| Amputee Coalition of America | 501(c)(3) | Washington, DC | $5,578,178 |
Data update history
September 21, 2024
Received grants
Identified 3 new grant, including a grant for $35,000 from Peak Foundation December 1, 2023
Posted financials
Added Form 990 for fiscal year 2022
November 30, 2023
Updated personnel
Identified 2 new personnel
November 25, 2023
Posted financials
Added Form 990 for fiscal year 2021
Nonprofit Types
Grantmaking organizationsDisease research fundraisersPublic health orgsHealth organizationsHeadquarter / parent organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchNational levelTax deductible donationsAccepts online donations
General information
- Address
- 101 Federal St Suite 440
- Boston, MA 02110
- Metro area
- Boston-Cambridge-Newton, MA-NH
- County
- Suffolk County, MA
- Website URL
- t1dexchange.org/Â
- Phone
- (617) 892-6100
IRS details
- EIN
- 45-1623549
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 2011
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- E80: Health, General and Financing
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Central organization
California AB-488 details
- AB 488 status
- Not Operating or In Process of Dissolving
- Charity Registration status
- Withdrawn
- FTB status revoked
- Not revoked
- AG Registration Number
- CT0216911
- FTB Entity ID
- None yet
- AB 488 data last updated ("as-of") date
- 2024-11-20
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