Program areas at The Als Association - Als Association MNNDSD Chapter
Care services - helping people with Als and their families live as full as a life as possible through direct programs for people living with Als (see schedule o for detail), support groups, phone support, and referrals.
Public awareness - educate and inform the public about the nature of Als through advocacy, newsletters, social media, and events.
Research - the Als Association, minnesota/nortMinnesotanorthth dakota/soutDakotasouthth Dakota Chapter is an affiliate of the national Als Association. Each year since its founding in 1985, the national Als Association has increased its investment in research grants. Since the ice bucket challenge, the Als Association has invested 122 million in the quest to unlock the mysteries of Als. In the past 25 years the minnesota/nortMinnesotanorthth dakota/soutDakotasouthth Dakota Chapter has helped raise more than 5.0 million for Als research. The Als Association funds more Als research than any other organization and its research enterprise...(continued on schedule o.)
Who funds The Als Association - Als Association MNNDSD Chapter
Grants from foundations and other nonprofits
Personnel at The Als Association - Als Association MNNDSD Chapter
| Name | Title | Compensation | Date of data |
|---|
| Jennifer Hjelle | Chief Executive Officer / Executive Director | $145,078 | 2022-04-12 |
| Greg Mitchell | President | $0 | 2024-01-31 |
| Marianne Keuhn | Managing Director , Care Services | | $120,508 | 2024-01-08 |
| Sarah Lettow | Managing Director, Volunteer Engagement | | 2024-01-08 |
| Sarah Sanchez | Manager Director, Advocacy | | | 2024-01-08 |
| ...and 8 more key personnel |
Financials for The Als Association - Als Association MNNDSD Chapter
| Revenues | FYE 01/2023 | FYE 01/2022 | % Change |
|---|
| Total grants, contributions, etc. | $292,784 | $4,662,324 | -93.7% |
| Program services | $0 | $0 | - |
| Investment income and dividends | $65,715 | $63,341 | 3.7% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $0 | $-83,084 | -100% |
| Net income from fundraising events | $184,407 | $-78,493 | 334.9% |
| Net income from gaming activities | $0 | $8,055 | -100% |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $0 | $0 | - |
| Total revenues | $542,906 | $4,572,143 | -88.1% |
Organizations like The Als Association - Als Association MNNDSD Chapter
| Organization | Type | Location | Revenue |
|---|
| The Als Association - Rhode Island Chapter | 501(c)(3) | Warwick, RI | $379,498 |
| The Als Association - Arizona Chapter | 501(c)(3) | Phoenix, AZ | $1,372,285 |
| ALS Association of Georgia | 501(c)(3) | Atlanta, GA | $1,495,964 |
| ALS Association Connecticut Chapter | 501(c)(3) | Milford, CT | $1,255,316 |
| The ALS Association - Western Pennsylvania Chapter | 501(c)(3) | Pittsburgh, PA | $585,221 |
| The Als Association - New Mexico Chapter | 501(c)(3) | Albuquerque, NM | $444,030 |
| The Als Association - Greater Chicago Chapter | 501(c)(3) | Chicago, IL | $2,192,995 |
| The Als Association - Orange County Chapter | 501(c)(3) | Tustin, CA | $754,291 |
| Epilepsy Foundation of Greater Los Angel | 501(c)(3) | Los Angeles, CA | $1,736,089 |
| National Multiple Sclerosis Society Georgia Chapter | 501(c)(3) | Atlanta, GA | $1,468,933 |
Data update history
May 23, 2024
Updated personnel
Identified 3 new personnel
March 4, 2024
Updated personnel
Identified 1 new personnel
March 1, 2024
Posted financials
Added Form 990N for fiscal year 2024
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsChapter / child organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
Political advocacyConducts researchLobbyingPartially liquidatedFundraising eventsState / local levelReceives government fundingCommunity engagement / volunteeringGala fundraisersTax deductible donations
General information
- Address
- 1919 University Ave W Suite 175
- Saint Paul, MN 55104
- Metro area
- Minneapolis-St. Paul-Bloomington, MN-WI
- County
- Ramsey County, MN
- Website URL
- als.org/mn-nd-sdÂ
- Phone
- (612) 672-0484
- Facebook page
- ALSAssociationMNNDSDÂ
- Twitter profile
- @alsa_mnndsdÂ
IRS details
- EIN
- 41-1756085
- Fiscal year end
- September
- Taxreturn type
- Form 990
- Year formed
- 1993
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G50: Nerve, Muscle, and Bone Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Child within group exemption
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