Program areas at The Bev Hartig Huntingtons Disease Foundation
Wenzhen Duan - Professor of Psychiatry at Johns Hopkins University. Working on neuron conversion for treating Huntington's disease.
Michael Hayden - Canada Research Chair in Human Genetics and Molecular Medicine, University Killam Professor in the Department of Medical Genetics, University of British Columbia Senior Scientist in the Centre for Molecular Medicine and Therapeutics. Working to lower mutant Huntington in treatment for Huntington's disease.
Myriam Heiman, Ph.D, at MIT - Project works on finding a gene theory for Huntington's Disease.
Grants made by The Bev Hartig Huntingtons Disease Foundation
Who funds The Bev Hartig Huntingtons Disease Foundation
Grants from foundations and other nonprofits
Personnel at The Bev Hartig Huntingtons Disease Foundation
| Name | Title | Compensation | Date of data |
|---|
| Cindi Berry | President | $0 | 2023-11-13 |
| Wava Raymond | Treasurer | $0 | 2023-06-30 |
| Lisa Rump | Secretary | $0 | 2023-06-30 |
| Nanette Johnson | Treasurer | $0 | 2022-06-30 |
| Cecelia Coble | Secretary | $0 | 2019-06-30 |
Financials for The Bev Hartig Huntingtons Disease Foundation
| Revenues | FYE 06/2023 | FYE 06/2022 | % Change |
|---|
| Total grants, contributions, etc. | $302,882 | $215,151 | 40.8% |
| Program services | $0 | $0 | - |
| Investment income and dividends | $1 | $4 | -75% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $0 | $0 | - |
| Net income from fundraising events | $-7,712 | $82,829 | -109.3% |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $0 | $0 | - |
| Total revenues | $295,171 | $297,984 | -0.9% |
Organizations like The Bev Hartig Huntingtons Disease Foundation
| Organization | Type | Location | Revenue |
|---|
| Families and Friends Supporting Cystic Fibrosis Care | 501(c)(3) | New York, NY | $497,707 |
| Cystic Fibrosis Research Institute | 501(c)(3) | Palo Alto, CA | $1,350,296 |
| Down Syndrome Society of Wichita | 501(c)(3) | Wichita, KS | $223,926 |
| Logans Light | 501(c)(3) | Flower Mound, TX | $90,212 |
| Walking Strong | 501(c)(3) | Woodland Hills, CA | $495,937 |
| The Chris Carrino Foundation for FSHD | 501(c)(3) | Marlboro, NJ | $271,566 |
| Ups for Downs NFP | 501(c)(3) | Schaumburg, IL | $132,332 |
| Congenital Heart Defect Coalition | 501(c)(3) | Butler, NJ | $193,986 |
| Bardet Biedl Syndrome Foundation | 501(c)(3) | West Chester, PA | $372,565 |
| Believing for Bryleigh Foundation | 501(c)(3) | New Braunfels, TX | $191,414 |
Data update history
January 17, 2024
Posted financials
Added Form 990 for fiscal year 2023
January 17, 2024
Updated personnel
Identified 3 new personnel
August 9, 2023
Posted financials
Added Form 990 for fiscal year 2021
July 15, 2023
Posted financials
Added Form 990 for fiscal year 2022
May 21, 2023
Used new vendors
Identified 1 new vendor, including
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Provides grantsConducts researchFundraising eventsGala fundraisersTax deductible donationsNo full-time employeesAccepts online donations
General information
- Address
- PO Box 7228
- Fishers, IN 46038
- Metro area
- Indianapolis-Carmel-Anderson, IN
- County
- Hamilton County, IN
- Website URL
- bevhartighuntingtonsdisease.com/Â
- Phone
- (317) 508-9282
IRS details
- EIN
- 46-0990518
- Fiscal year end
- June
- Taxreturn type
- Form 990
- Year formed
- 2012
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G20: Birth Defects and Genetic Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
Free account sign-up
Want updates when The Bev Hartig Huntingtons Disease Foundation has new information, or want to find more organizations like The Bev Hartig Huntingtons Disease Foundation?
Create free Cause IQ account