| Grantee | Grant description | Grant year | Amount |
|---|---|---|---|
| University of California San Francisco Foundation (UCSF) | Research | 2023-12 | $2,394,193 |
| Memorial Sloan-Kettering Cancer Center / Memorial Hosp for Cancer and Allied | Research | 2023-12 | $442,193 |
| Mayo Clinic | Research | 2023-12 | $293,922 |
| ...and 2 more grants made | |||
| Grantmaker | Grantmaker tax period | Description | Amount |
|---|---|---|---|
| Association for Frontotemporal Degeneration (AFTD) | 2023-06 | Genfi Research Center Support | $290,000 |
| Skylight Charitable Trust | 2022-12 | Further Ground Breaking Work in FTD | $100,000 |
| Network for Good | 2022-12 | Unrestricted | $13,688 |
| ...and 3 more grants received | |||
| Name | Title | Compensation | Date of data |
|---|---|---|---|
| Rodney Perlman | President | $343,000 | 2023-12-31 |
| Laura Mitic | Acting President and Chief Scientific Officer | $101,728 | 2024-09-21 |
| Alexandra Nicholson | Director , Research Partnerships | $128,000 | 2024-09-21 |
| Rachel Acuna-Narvaez | Project Manager , Biomarker Operations | 2024-09-21 | |
| Christopher Donohoe | Secretary and Treasurer | $0 | 2023-12-31 |
| ...and 1 more key personnel | |||
| Revenues | FYE 12/2023 |
|---|---|
| Total grants, contributions, etc. | $444,020 |
| Program services | $28,051 |
| Investment income and dividends | $1,614,362 |
| Tax-exempt bond proceeds | $0 |
| Royalty revenue | $0 |
| Net rental income | $0 |
| Net gain from sale of non-inventory assets | $0 |
| Net income from fundraising events | $0 |
| Net income from gaming activities | $0 |
| Net income from sales of inventory | $0 |
| Miscellaneous revenues | $0 |
| Total revenues | $2,086,433 |
| Fiscal year ending | Date received by IRS | Form | PDF link |
|---|---|---|---|
| 2023-12 | 2024-07-08 | 990 | View PDF |
| 2022-12 | 2024-03-15 | 990 | View PDF |
| 2022-12 | 2023-07-12 | 990 | View PDF |
| 2021-12 | 2022-07-18 | 990 | View PDF |
| 2020-12 | 2021-08-06 | 990 | View PDF |
| ...and 10 more Form 990s | |||
| Organization | Type | Location | Revenue |
|---|---|---|---|
| Alzheimer's Research Foundationfisher Center | 501(c)(3) | New York, NY | $7,084,008 |
| Rett Syndrome Research Trust (RSRT) | 501(c)(3) | Trumbull, CT | $8,523,815 |
| Scleroderma Research Foundation (SRF) | 501(c)(3) | San Francisco, CA | $5,892,738 |
| Open Medicine Foundation | 501(c)(3) | Agoura Hills, CA | $6,058,625 |
| The Arvo Foundation for Eye Research | 501(c)(3) | Rockville, MD | $997,892 |
| Lions World Vision Institute Foundation | 501(c)(3) | Tampa, FL | $1,653,599 |
| FOXG1 Research | 501(c)(3) | Sands Point, NY | $991,426 |
| Cryptic Masons Medical Research Foundation | 501(c)(3) | Brownsburg, IN | $2,054,716 |
| Children's Health Foundation / Children's Medical Research Inc | 501(c)(3) | Oklahoma City, OK | $5,543,428 |
| Saem Research Foundation | 501(c)(3) | Des Plaines, IL | $927,684 |
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