Program areas at The Brain Tumor Network
Patient navigation services are The core program of The Brain Tumor Network (btn). With The scarcity of personalized treatment information available to individuals in The usa diagnosed with primary Brain tumors, btn provides important informational/navigation services to patients, caregivers, and care providers. Our team of nurse navigators and social workers respond to online requests and telephone inquiries to meet patients/families wherever they are in their Brain Tumor treatment journey, and to help them gather The information they need to explore their next steps with their healthcare providers. Btn navigated 940 patients nationwide during 2023. Services provided include: conducting personalized clinical trial searches, assistance ascertaining eligibility for participation in identified trials, facilitating second opinions and consultations, identifying specialty providers near patients' home communities, and obtaining and reviewing patient records. Btn does not provide medical advice, but does provide personalized treatment-related information to equip patients and family to enter into decision-making conversations with their healthcare professionals.
Who funds The Brain Tumor Network
Grants from foundations and other nonprofits
Personnel at The Brain Tumor Network
| Name | Title | Compensation | Date of data |
|---|
| Jill Wyant | President and Chief Executive Officer , Madison | $0 | 2023-12-31 |
| Dan Ryan | Managing Director | | 2023-09-18 |
| Hilary Keeley | Board Member | $0 | 2023-12-31 |
| Kay W. Verble | Former Executive Director | | 2023-09-18 |
| Laura D. Hynes, Ma, BSN, Ba, RN | Director of Operations | | 2023-09-18 |
| ...and 2 more key personnel |
Financials for The Brain Tumor Network
| Revenues | FYE 12/2023 | FYE 12/2022 | % Change |
|---|
| Total grants, contributions, etc. | $2,195,192 | $3,464,824 | -36.6% |
| Program services | $0 | $0 | - |
| Investment income and dividends | $179,188 | $31,850 | 462.6% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $1,305 | $0 | 999% |
| Net income from fundraising events | $0 | $0 | - |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $0 | $0 | - |
| Total revenues | $2,375,685 | $3,496,674 | -32.1% |
Organizations like The Brain Tumor Network
| Organization | Type | Location | Revenue |
|---|
| American Lung Association of the Mountain Pacific | 501(c)(3) | Seattle, WA | $6,717,008 |
| Americans for Better Hearing Foundation | 501(c)(3) | Burr Ridge, IL | $1,602,966 |
| Brain Injury Association of NH | 501(c)(3) | Concord, NH | $3,324,093 |
| Prevent Blindness Ohio Affiliate | 501(c)(3) | Columbus, OH | $1,631,605 |
| Foundation Fighting Blindness Retinal Degeneration Fund | 501(c)(3) | Columbia, MD | $9,316,837 |
| Brain Injury Alliance of Iowa | 501(c)(3) | Iowa City, IA | $970,571 |
| Sights for Hope | 501(c)(3) | Allentown, PA | $1,636,198 |
| Brain Injury Alliance of Nebraska | 501(c)(3) | Lincoln, NE | $1,116,423 |
| Minnesota Lions Vision Foundation | 501(c)(3) | Saint Paul, MN | $7,123,575 |
| Breathe California of the Bay Area Golden Gate and Central Coast | 501(c)(3) | San Jose, CA | $1,333,909 |
Data update history
October 19, 2024
Received grants
Identified 1 new grant, including a grant for $10,000 from Erasca Foundation July 11, 2024
Posted financials
Added Form 990 for fiscal year 2023
December 3, 2023
Posted financials
Added Form 990 for fiscal year 2022
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disordersCancer
Characteristics
Conducts researchTax deductible donationsAccepts online donations
General information
- Address
- 816 A1a N 201
- Ponte Vedra Beach, FL 32082
- Metro area
- Jacksonville, FL
- County
- St. Johns County, FL
- Website URL
- braintumornetwork.org/Â
- Phone
- (844) 286-6110
IRS details
- EIN
- 46-3339186
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 2013
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G40: Diseases of Specific Organs
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
California AB-488 details
- AB 488 status
- May Operate or Solicit for Charitable Purposes
- Charity Registration status
- Current
- FTB status revoked
- Not revoked
- AG Registration Number
- CT0258521
- FTB Entity ID
- None yet
- AB 488 data last updated ("as-of") date
- 2024-12-31
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