| Grantee | Grant description | Grant year | Amount |
|---|---|---|---|
| Vanderbilt University Medical Center | To Fund Research To Advance Treatment Options for Congential Heart Disease | 2022-12 | $199,127 |
| Children's Hospital of Philadelphia (CHOP) | To Fund Research To Advance Treatment Options for Congential Heart Disease | 2022-12 | $96,828 |
| Johns Hopkins All Children's Hospital (ACH) | To Fund Research To Advance Treatment Options for Congential Heart Disease | 2022-12 | $66,416 |
| ...and 5 more grants made | |||
| Grantmaker | Grantmaker tax period | Description | Amount |
|---|---|---|---|
| The Sage and Dice Foundation | 2023-12 | To Assist the Recipient in Carrying Out Its Charitable Purpose. | $175,000 |
| Adair Family Foundation | 2023-12 | Funding for General Operating Expenses | $100,000 |
| Willis and Reba Johnson's Foundation | 2023-12 | Congenital Heart Disease Research | $100,000 |
| ...and 13 more grants received | |||
| Name | Title | Compensation | Date of data |
|---|---|---|---|
| Jennifer Peyser | Executive Director | 2024-10-01 | |
| Tracy Hudson | Marketing and Communications Director | 2024-10-01 | |
| Caroline Bryan | Secretary and Treasurer | $0 | 2024-10-01 |
| Ellen Boyer | President | $120,000 | 2024-10-01 |
| Bo Boyer | Vice President | $0 | 2022-12-31 |
| ...and 1 more key personnel | |||
| Revenues | FYE 12/2022 |
|---|---|
| Total grants, contributions, etc. | $1,927,568 |
| Program services | $62,622 |
| Investment income and dividends | $915 |
| Tax-exempt bond proceeds | $0 |
| Royalty revenue | $0 |
| Net rental income | $0 |
| Net gain from sale of non-inventory assets | $0 |
| Net income from fundraising events | $1,230,826 |
| Net income from gaming activities | $0 |
| Net income from sales of inventory | $0 |
| Miscellaneous revenues | $0 |
| Total revenues | $3,221,931 |
| Fiscal year ending | Date received by IRS | Form | PDF link |
|---|---|---|---|
| 2022-12 | 2023-11-14 | 990 | View PDF |
| 2021-12 | 2022-11-14 | 990 | View PDF |
| 2020-12 | 2021-10-06 | 990 | View PDF |
| 2019-12 | 2020-09-29 | 990 | View PDF |
| 2018-12 | 2019-12-13 | 990 | View PDF |
| Organization | Type | Location | Revenue |
|---|---|---|---|
| The Genesis Foundation for Children | 501(c)(3) | Boston, MA | $1,035,084 |
| Great Lakes Hemophilia Foundation | 501(c)(3) | Milwaukee, WI | $1,557,533 |
| Global Smile Foundation | 501(c)(3) | Westwood, MA | $1,426,339 |
| Hemophilia Foundation of Michigan | 501(c)(3) | Ypsilanti, MI | $3,850,387 |
| New England Hemophilia Association | 501(c)(3) | Dedham, MA | $1,196,989 |
| United Cerebral Palsy of Middle Tennessee | 501(c)(3) | Nashville, TN | $1,396,807 |
| Down Syndrome Association of Central Ohio | 501(c)(3) | Columbus, OH | $4,900,253 |
| National Down Syndrome Society (NDSS) | 501(c)(3) | Washington, DC | $3,354,289 |
| Hemophilia of Indiana | 501(c)(3) | Indianapolis, IN | $1,184,923 |
| Williams Syndrome Association | 501(c)(3) | Newark, NJ | $2,421,502 |
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