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EIN 61-1493017

The Desmoid Tumor Research Foundation

IRS 501(c) type
501(c)(3)
Num. employees
7
City
Woodcliff Lake
State
New Jersey
Year formed
2005
Most recent tax filings
2023-12-01
NTEE code, primary
H30: Cancer Research
Description
The Desmoid Tumor Research Foundation raises funds to support medical research for desmoid tumors. The organization distributed five research grants to prestigious cancer research facilities during the calendar year to continue the work concerning desmoid tumor research.
Total revenues
$333,727
2023
Total expenses
$707,649
2023
Total assets
$1,034,489
2023
Num. employees
7
2023

Program areas at The Desmoid Tumor Research Foundation

We aggressively fund Desmoid Tumor Research, accelerate The development of improved therapies, drive collaborations among clinicians and researchers worldwide, and support patients and doctors through education. Our goal is to find a cure for each and every patient diagnosed with this rare disease.

Grants made by The Desmoid Tumor Research Foundation

GranteeGrant descriptionAmount
Stanford UniversityResearch Grant$30,000
Children's Hospital Los Angeles (CHLA)Research Grant$29,000

Who funds The Desmoid Tumor Research Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
American Online Giving FoundationGeneral Support$15,999
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$6,800
United Food & Commercial Workers Union - 2D LocalContributions$6,800
...and 3 more grants received

Personnel at The Desmoid Tumor Research Foundation

NameTitleCompensation
Jeanne WhitingExecutive Director$78,333
Lynne HernandezDirector of Operations
Debbie NathanDevelopment Director
Barbara Ann SellingerBoard$0
Anna GreeneResearch Director
...and 3 more key personnel

Financials for The Desmoid Tumor Research Foundation

RevenuesFYE 12/2023
Total grants, contributions, etc.$396,209
Program services$0
Investment income and dividends$61,045
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$-131,295
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$7,768
Total revenues$333,727

Form 990s for The Desmoid Tumor Research Foundation

Fiscal year endingDate received by IRSFormPDF link
2023-122024-11-15990View PDF
2022-122023-10-20990View PDF
2021-122022-09-30990View PDF
2020-122021-07-19990View PDF
2019-122021-02-22990View PDF
...and 9 more Form 990s
Data update history
January 4, 2025
Posted financials
Added Form 990 for fiscal year 2023
January 4, 2025
Received grants
Identified 1 new grant, including a grant for $2,000 from The Aaron and Lillie Straus Foundation 9830002
May 18, 2024
Received grants
Identified 1 new grant, including a grant for $15,999 from American Online Giving Foundation
February 21, 2024
Updated personnel
Identified 2 new personnel
December 6, 2023
Posted financials
Added Form 990 for fiscal year 2022
Nonprofit Types
Grantmaking organizationsDisease research fundraisersMedical research organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchFundraising eventsNational levelTax deductible donationsAccepts online donations
General information
Address
Co Cla LLP 50 Tice Blvd 175
Woodcliff Lake, NJ 07677
Metro area
New York-Newark-Jersey City, NY-NJ-PA
County
Bergen County, NJ
Website URL
dtrf.org/ 
Phone
(914) 262-6595
IRS details
EIN
61-1493017
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2005
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
H30: Cancer Research
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
California AB-488 details
AB 488 status
May Operate or Solicit for Charitable Purposes
Charity Registration status
Current
FTB status revoked
Not revoked
AG Registration Number
CT0154307
FTB Entity ID
None yet
AB 488 data last updated ("as-of") date
2025-01-15
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