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EIN 61-1493017

The Desmoid Tumor Research Foundation

IRS 501(c) type
501(c)(3)
Num. employees
5
City
Salt Lake City
State
Utah
Year formed
2005
Most recent tax filings
2022-12-01
NTEE code, primary
H30: Cancer Research
Description
The Desmoid Tumor Research Foundation raises funds to support medical research for desmoid tumors. The organization distributed five research grants to prestigious cancer research facilities during the calendar year to continue the work concerning desmoid tumor research.
Total revenues
$993,749
2022
Total expenses
$712,927
2022
Total assets
$1,439,427
2022
Num. employees
5
2022

Program areas at The Desmoid Tumor Research Foundation

5 Research grants were distributed to prestigious cancer Research facilities during The calendar year to continue The work concerning Desmoid Tumor Research.

Grants made by The Desmoid Tumor Research Foundation

GranteeGrant descriptionAmount
Stanford UniversityResearch Grant$95,000

Who funds The Desmoid Tumor Research Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$80,193
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$80,193
American Online Giving FoundationGeneral Support$15,999
...and 3 more grants received

Personnel at The Desmoid Tumor Research Foundation

NameTitleCompensation
Jeanne WhitingExecutive Director$78,333
Lynne HernandezDirector of Operations
Debbie NathanDevelopment Director
Barbara Ann SellingerBoard$0
Anna GreeneResearch Director
...and 3 more key personnel

Financials for The Desmoid Tumor Research Foundation

RevenuesFYE 12/2022
Total grants, contributions, etc.$1,022,315
Program services$0
Investment income and dividends$4,908
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$-33,474
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$993,749

Form 990s for The Desmoid Tumor Research Foundation

Fiscal year endingDate received by IRSFormPDF link
2022-122023-10-20990View PDF
2021-122022-09-30990View PDF
2020-122021-07-19990View PDF
2019-122021-02-22990View PDF
2018-122020-01-10990View PDF
...and 8 more Form 990s
Data update history
February 21, 2024
Updated personnel
Identified 2 new personnel
December 6, 2023
Posted financials
Added Form 990 for fiscal year 2022
November 28, 2023
Used new vendors
Identified 1 new vendor, including
November 25, 2023
Posted financials
Added Form 990 for fiscal year 2021
October 23, 2023
Received grants
Identified 2 new grant, including a grant for $13,617 from American Online Giving Foundation
Nonprofit Types
Grantmaking organizationsDisease research fundraisersMedical research organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchFundraising eventsNational levelReceives government fundingTax deductible donationsAccepts online donations
General information
Address
99 W S Temple Unit 1707
Salt Lake City, UT 84101
Metro area
Salt Lake City, UT
County
Salt Lake County, UT
Website URL
dtrf.org/ 
Phone
(914) 262-6595
IRS details
EIN
61-1493017
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2005
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
H30: Cancer Research
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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