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EIN 46-5433260

The Dysautonomia Project

IRS 501(c) type
501(c)(3)
Num. employees
4
City
Clearwater
State
Florida
Year formed
2014
Most recent tax filings
2023-12-01
NTEE code, primary
G80: Specifically Named Diseases
Description
The Dysautonomia Project educates healthcare professionals, communities, and patients about dysautonomia through virtual and in-person education/awareness trainings for pediatric nurse practitioners, graduate school nursing students, and other medical professionals. They also distribute and sell TDP books to further educate the community.
Total revenues
$741,130
2023
Total expenses
$525,726
2023
Total assets
$1,220,670
2023
Num. employees
4
2023

Program areas at The Dysautonomia Project

Our programs and initiatives are as unique as our mission. They range from our award-winning book, The Dysautonomia Project, which remains the cornerstone of our mission, to the first ever free, online video library (Autonomic Education) connecting the world's leading specialists to providers and patients anywhere. The Residents Course mini fellowship, presented in partnership with the American Autonomic Society, is the first program of its kind exponentially increasing the number of doctors able to diagnose and treat dysautonomia.

Who funds The Dysautonomia Project

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Dwayne Hawkins Family FoundationUnrestricted Grant$50,000
Dwayne Hawkins Family Foundation2023 Education Grant$50,000
Dwayne Hawkins Family Foundation2023 Under the Umbrella Gala Paddle Raise$50,000
...and 9 more grants received

Personnel at The Dysautonomia Project

NameTitleCompensation
Alexandra KeyExecutive Director$95,078
Marli LutzMSM Director of Development
Cheryl FaberDirector of Education
Ashleigh Goforth, MSWDevelopment and Events Manager
Nate FreemanBoard Treasurer$0
...and 4 more key personnel

Financials for The Dysautonomia Project

RevenuesFYE 12/2023
Total grants, contributions, etc.$753,780
Program services$12,020
Investment income and dividends$19,314
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$27,307
Net income from fundraising events$-72,223
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$932
Total revenues$741,130

Form 990s for The Dysautonomia Project

Fiscal year endingDate received by IRSFormPDF link
2023-122024-08-28990View PDF
2022-122023-06-19990View PDF
2021-122022-08-24990View PDF
2021-122022-05-16990View PDF
2020-122022-08-24990View PDF
...and 7 more Form 990s
Data update history
November 6, 2024
Posted financials
Added Form 990 for fiscal year 2023
October 23, 2024
Received grants
Identified 7 new grant, including a grant for $50,000 from Dwayne Hawkins Family Foundation
May 18, 2024
Received grants
Identified 2 new grant, including a grant for $5,000 from Sonia Raymund Foundation
December 26, 2023
Received grants
Identified 1 new grant, including a grant for $15,000 from Ronald & Joyce Wanek Foundation
September 18, 2023
Updated personnel
Identified 7 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchPartially liquidatedFundraising eventsEndowed supportGala fundraisersTax deductible donationsAccepts online donations
General information
Address
4592 Ulmerton Rd Ste 104
Clearwater, FL 33762
Metro area
Tampa-St. Petersburg-Clearwater, FL
County
Pinellas County, FL
Website URL
thedysautonomiaproject.org/ 
Phone
(727) 304-1547
IRS details
EIN
46-5433260
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2014
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G80: Specifically Named Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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