Program areas at The EHE Foundation
Research: The Ehe Foundation funded research projects in basic and translational science aimed to advance knowledge in The disease, enabling The identification of effective treatments for Ehe. In addition to funding external research, The Foundation funded and advanced patient-led research initiatives including biobanking of Ehe biospecimens, develpment of a global patient registry, and expanding Ehe cell-line development. The Foundation continued its growth of a global patient-led research network, including clinician-scientists, researchers, and advocates in a scientific symposium.
Patient services: The Ehe Foundation helped patients and their families find accurate information about Ehe, including physicians experienced in treating Ehe, and treatment options by developing and publishing educational content, hosting educational conferences, and providing online and 1:1 peer support.
Grants made by The EHE Foundation
Who funds The EHE Foundation
Grants from foundations and other nonprofits
Personnel at The EHE Foundation
| Name | Title | Compensation | Date of data |
|---|
| Tammy Silverthorne | Executive Director | $11,342 | 2023-12-31 |
| Medha Sutliff | Past Executive Director | $88,080 | 2022-12-31 |
| Sarah Bright | Treasurer | $0 | 2024-05-14 |
| Julia Wahl | Board Vice President and Finance | $41,100 | 2023-12-31 |
| Jenni Kovach | President | $0 | 2023-12-31 |
| ...and 2 more key personnel |
Financials for The EHE Foundation
| Revenues | FYE 12/2023 | FYE 12/2022 | % Change |
|---|
| Total grants, contributions, etc. | $359,411 | $870,093 | -58.7% |
| Program services | $0 | $0 | - |
| Investment income and dividends | $55,182 | $22,402 | 146.3% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $0 | $0 | - |
| Net income from fundraising events | $0 | $0 | - |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $0 | $1,333 | -100% |
| Total revenues | $414,593 | $893,828 | -53.6% |
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Data update history
August 13, 2024
Posted financials
Added Form 990 for fiscal year 2023
August 9, 2024
Updated personnel
Identified 2 new personnel
December 2, 2023
Posted financials
Added Form 990 for fiscal year 2022
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Political advocacyProvides grantsConducts researchPeer-to-peer fundraisingOperates internationallyFundraising races, competitions, and tournamentsTax deductible donationsNo full-time employeesAccepts online donations
General information
- Address
- 1561 Hopi CT
- Hobart, WI 54313
- Metro area
- Green Bay, WI
- County
- Brown County, WI
- Website URL
- fightehe.org/Â
- Phone
- (906) 280-6432
IRS details
- EIN
- 47-3238441
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 2015
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G80: Specifically Named Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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