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EIN 20-2529619

The Hemophilia Alliance

IRS 501(c) type
501(c)(3)
Num. employees
9
City
Clearwater
State
Florida
Year formed
2005
Most recent tax filings
2022-12-01
NTEE code, primary
G20: Birth Defects and Genetic Diseases
Description
The Hemophilia Alliance provides member Hemophilia Treatment Center with resources and services to sustain the Comprehensive Care Model for individuals with bleeding and clotting disorders.
Total revenues
$8,928,051
2022
Total expenses
$6,260,744
2022
Total assets
$21,636,521
2022
Num. employees
9
2022

Program areas at The Hemophilia Alliance

To act as a broker and/or Purchasing agent for members to obtain Purchasing terms for blood clotting factor and other materials used to treat individuals with Hemophilia or related bleeding disorders. Counseling centers on complying with state & federal law and grant requirements, aiding in The production of educational pieces, promoting The value of The comprehensive care model to policy makers, patients and third party payers.

Grants made by The Hemophilia Alliance

GranteeGrant descriptionAmount
American Thrombosis and Hemostasis Network (ATHN)Enhanced Data Management Within Hemophilia Treatment Centers.$525,000
The Hemophilia Alliance FoundationSupport for Grants and Or Gifts To Organizations That Assist Individuals in Managing Their Care of Bleeding and Clotting Disorders.$522,000
National Bleeding Disorders FoundationPromote Advocacy, Education and Research for Patients and Families With Bleeding Disorders.$511,000
...and 5 more grants made

Who funds The Hemophilia Alliance

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
The Alliance Pharmacy1st and 2nd Annual Pharmacy Ce Conference$108,000

Personnel at The Hemophilia Alliance

NameTitleCompensation
Joseph N PugliesePresident$647,475
Jeffrey A AmondDirector , Member and Community Relations$155,925
Kiet HuynhManager of It Solutions$113,313
Steven M PowellTreasurer / Director$0
Eric GrayVice Chair / Treasurer / Director$0
...and 7 more key personnel

Financials for The Hemophilia Alliance

RevenuesFYE 12/2022
Total grants, contributions, etc.$678,263
Program services$8,069,115
Investment income and dividends$151,636
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$29,037
Total revenues$8,928,051

Form 990s for The Hemophilia Alliance

Fiscal year endingDate received by IRSFormPDF link
2022-122023-11-15990View PDF
2021-122022-11-14990View PDF
2020-122021-11-12990View PDF
2019-122021-02-19990View PDF
2018-122020-01-14990View PDF
...and 9 more Form 990s
Data update history
January 22, 2024
Posted financials
Added Form 990 for fiscal year 2022
January 22, 2024
Updated personnel
Identified 7 new personnel
January 2, 2024
Received grants
Identified 1 new grant, including a grant for $108,000 from The Alliance Pharmacy
November 25, 2023
Posted financials
Added Form 990 for fiscal year 2021
July 7, 2023
Updated personnel
Identified 4 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Political advocacyConducts researchLobbyingTax deductible donations
General information
Address
2655 Ulmerton Rd 263
Clearwater, FL 33762
Metro area
Tampa-St. Petersburg-Clearwater, FL
Website URL
hemoalliance.org/ 
Phone
(215) 279-9236
Facebook page
The-Hemophilia-Alliance 
Twitter profile
@hemoalliance 
IRS details
EIN
20-2529619
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2005
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G20: Birth Defects and Genetic Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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