EIN 84-4147678

The Hiv and Hepatitis Policy Institute

IRS 501(c) type
501(c)(3)
Num. employees
3
Year formed
2019
Most recent tax filings
2022-12-01
NTEE code, primary
Description
Advocates affordable, quality healthcare for people with HIV, hepatitis and chronic health conditions; monitors policies for prevention and treatment.
Total revenues
$1,257,550
2022
Total expenses
$1,148,591
2022
Total assets
$821,996
2022
Num. employees
3
2022

Program areas at The Hiv and Hepatitis Policy Institute

Hiv: hiv+hep carried out activities that advance policies and programs that increase Hiv prevention and treatment, including The ryan white hiv/aids program and The activities of The centers for disease control and prevention Hiv division. As The federal government ramped up activities to end Hiv in The united states, hiv+hep participated in ongoing opportunities to develop and implement The programs and policies to achieve The goals of The initiative. One area of focus was pre-exposure prophylaxis (prep), a drug that prevents Hiv, including private insurance coverage, zero patient cost-sharing obligations by insurers, and The creation of a national prep program. We engaged with a modeling firm to ascertain how much federal funding would be needed to meet The prep goals contained in The national Hiv strategic plan and conducted public outreach of The results. As a new form of prep was approved by The fda we provided input to uspstf on its benefit and clinical appropriateness. Hiv+hep worked to ensure access to all antiretrovirals to treat Hiv in The medicare part d program and The private insurance market. We reviewed insurance benefit design to ensure plans were compliant with The aca. As part of all its work it ensured that The policies and program best meet The needs of those highly impacted by Hiv including gay men, transgender women, blacks and latinos, drug users, and The poor. Hiv+hep spoke at numerous Hiv meetings and webinars, submitted public comments and testimony, issued press releases, responded to media inquiries, and conducted other media activities. This work was conducted on its own and in coalition with others, including The workgroups of The federal aids Policy partnership.
General healthcare access: hiv+hep worked to ensure people living with serious and chronic health conditions have access to affordable healthcare, including prescription drugs. This included Policy analysis in The areas of medicaid, medicare, and private insurance. Hiv+hep educated The patient community, The media, and policymakers at The federal and state levels, on The importance of copay assistance for prescription drugs. We challenged in court a federal regulation that allows insurers to implement copay accumulator programs. Hiv+hep also participated in The activities of The national association of insurance commissioners, including The development of a white paper on pharmacy benefit managers and a consumer representatives project on The coverage of preventive services. Hiv+hep submitted comments on proposed executive agency regulations, issued press releases and responded to media inquiries, and presented before patient groups. This work was performed on its own and in coalition with other patient groups, including The partnership for part d, medicare access for patients rx (maprx), and all copays count coalition.
Hepatitis: hiv+hep carried out activities that advance policies and programs that increase viral Hepatitis prevention and treatment, including The activities of The centers for disease control and prevention viral Hepatitis division. The principal focus of hiv+hep's activities was to ensure there are sufficient resources for states and community-based organizations to offer Hepatitis testing, conduct surveillance, and link people with Hepatitis to healthcare and The treatment they need to maintain their health or in The case of Hepatitis c, to be cured. Hiv+hep offered comments to The administration's proposal to end Hepatitis c. hiv+hep submitted public comments and testimony, issued press releases, responded to media inquiries and conducted other media activities. Since many people impacted by Hepatitis are injected drugs users, hiv+hep also focused on their needs and others associated with The opioid epidemic. This work was conducted on its own and in coalition with others, including The Hepatitis appropriations coalition.

Who funds The Hiv and Hepatitis Policy Institute

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Pharmaceutical Research and Manufacturers of of America (PHRMA)General Contribution$175,000
Biotechnology Innovation Organization (BIO)Support$7,500

Personnel at The Hiv and Hepatitis Policy Institute

NameTitleCompensation
Carl SchmidExecutive Director$269,788
Kevin HerwigHealth Policy Manager
Justin C. SmithSecretary$0
Rekha RameshTreasurer$0

Financials for The Hiv and Hepatitis Policy Institute

RevenuesFYE 12/2022
Total grants, contributions, etc.$1,182,550
Program services$0
Investment income and dividends$0
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$75,000
Total revenues$1,257,550

Form 990s for The Hiv and Hepatitis Policy Institute

Fiscal year endingDate received by IRSFormPDF link
2022-122023-11-14990View PDF
2021-122022-11-03990View PDF
2020-122021-07-09990View PDF

Organizations like The Hiv and Hepatitis Policy Institute

OrganizationLocationRevenue
Tag Treatment Action Group (TAG)New York, NY$2,911,955
Vermont CaresBurlington, VT$1,404,921
North Carolina AIDS Action NetworkDurham, NC$541,624
The AIDS InstituteTampa, FL$2,011,987
Prep4allNew York, NY$549,656
Allies Linked for the Prevention of Hiv and AidsBoise, ID$345,024
Hispanic AIDS Forum (HAF)Bronx, NY$5,154,586
Access Support NetworkSan Luis Obispo, CA$3,404,241
Esperanza Peace and Justice CenterSan Antonio, TX$1,915,604
Community Health Awareness GroupDetroit, MI$4,102,957
Data update history
January 22, 2024
Posted financials
Added Form 990 for fiscal year 2022
January 1, 2024
Used new vendors
Identified 2 new vendors, including , and
January 1, 2024
Received grants
Identified 2 new grant, including a grant for $175,000 from Pharmaceutical Research and Manufacturers of of America (PHRMA)
November 25, 2023
Posted financials
Added Form 990 for fiscal year 2021
May 21, 2023
Received grants
Identified 1 new grant, including a grant for $7,500 from Biotechnology Innovation Organization (BIO)
Nonprofit Types
Social advocacy organizationsDisease-focused nonprofitsCharities
Issues
HealthDiseases and disordersHIV / AIDS
Characteristics
MembershipsPolitical advocacyLobbyingTax deductible donationsAccepts online donations
General information
Address
1602b Belmont St NW
Washington, DC 20009
Metro area
Washington-Arlington-Alexandria, DC-VA-MD-WV
County
District of Columbia, DC
Website URL
hivhep.org/ 
Phone
(202) 462-3042
IRS details
EIN
84-4147678
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2019
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G81: HIV / AIDS
NAICS code, primary
813319: Social Advocacy Organizations
Parent/child status
Independent
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