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EIN 85-4064822

The Jansen de Vries Syndrome Foundation

IRS 501(c) type
501(c)(3)
Num. employees
Unknown
City
Natick
State
Massachusetts
Year formed
2021
Most recent tax filings
2022-12-01
NTEE code, primary
G20: Birth Defects and Genetic Diseases
Description
The Jansen de Vries Syndrome Foundation focuses on providing education and resources to families and medical professionals. Its mission is to raise awareness about this rare genetic condition and unite families, researchers, and medical professionals through facilitation. The Foundation works towards providing researchers with necessary resources to gain a better understanding of the PPM1D mutation and develop potential treatments and therapies to improve the lives of those living with Jansen de Vries Syndrome by fundraising and grant efforts.
Total revenues
$25,569
2022
Total expenses
$3,738
2022
Total assets
$41,373
2022
Num. employees
n/a

Personnel at The Jansen de Vries Syndrome Foundation

NameTitleCompensation
Kara KilroyPresident and Director$0

Financials for The Jansen de Vries Syndrome Foundation

RevenuesFYE 12/2022
Total grants, contributions, etc.$24,737
Program services$0
Membership dues$0
Investment income and dividends$0
Net gain from sale of non-inventory assets$0
Net income from gaming activities and fundraising events, combined$0
Net income from sales of inventory$832
Miscellaneous revenues$0
Total revenues$25,569

Form 990s for The Jansen de Vries Syndrome Foundation

Fiscal year endingDate received by IRSFormPDF link
2022-122024-02-14990EZView PDF
2021-122022-11-15990EZView PDF

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Data update history
November 25, 2023
Posted financials
Added Form 990EZ for fiscal year 2021
July 7, 2023
Updated personnel
Identified 3 new personnel
May 23, 2023
Used new vendors
Identified 1 new vendor, including
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchTax deductible donationsNo full-time employees
General information
Address
PO Box 14
Natick, MA 01760
Metro area
Boston-Cambridge-Newton, MA-NH
County
Middlesex County, MA
Website URL
jansen-devries.org/ 
Phone
(413) 364-3310
IRS details
EIN
85-4064822
Fiscal year end
December
Taxreturn type
Form 990-EZ
Year formed
2021
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G20: Birth Defects and Genetic Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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