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EIN 59-7059890

The Joshua Frase Foundation for Congenital Myopathy Research

IRS 501(c) type
501(c)(3)
Num. employees
1
City
Ponte Vedra Beach
State
Florida
Year formed
1996
Most recent tax filings
2022-12-01
NTEE code, primary
H90: Medical Specialty Research
Description
Research for Myotubular Myopathy and other Congenital Myopathies, educational information, and research support.
Total revenues
$67,138
2022
Total expenses
$89,704
2022
Total assets
$75,171
2022
Num. employees
1
2022

Program areas at The Joshua Frase Foundation for Congenital Myopathy Research

Research
Assistance to families with the purchase of needed medical equipment and being a resource for educating families worldwide on the care for these critically ill children as well as providing resources for them

Grants made by The Joshua Frase Foundation for Congenital Myopathy Research

GranteeGrant descriptionAmount
Children's Hospital Pediatric Associates (BCH)Research$10,000

Who funds The Joshua Frase Foundation for Congenital Myopathy Research

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Network for GoodUnrestricted$5,427
AmazonSmile FoundationGeneral Support$555

Personnel at The Joshua Frase Foundation for Congenital Myopathy Research

NameTitleCompensation
Alison Rockett-FrasePresident$55,295
Paul FraseSecretary / Director / President$0
Lisa NickersonVice President$0
Jeff DixonSecretary$0
Alison FrasePresident$32,526
...and 1 more key personnel

Financials for The Joshua Frase Foundation for Congenital Myopathy Research

RevenuesFYE 12/2022
Total grants, contributions, etc.$67,123
Program services$0
Investment income and dividends$15
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$67,138

Form 990s for The Joshua Frase Foundation for Congenital Myopathy Research

Fiscal year endingDate received by IRSFormPDF link
2022-122023-12-15990View PDF
2021-122023-01-26990View PDF
2020-122021-11-15990View PDF
2019-122021-04-02990View PDF
2018-122020-06-08990View PDF
...and 9 more Form 990s
Data update history
February 6, 2024
Posted financials
Added Form 990 for fiscal year 2022
February 6, 2024
Updated personnel
Identified 2 new personnel
July 1, 2023
Posted financials
Added Form 990 for fiscal year 2020
June 20, 2023
Posted financials
Added Form 990 for fiscal year 2021
June 17, 2023
Updated personnel
Identified 1 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersMedical research organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchTax deductible donations
General information
Address
PO Box 2041
Ponte Vedra Beach, FL 32004
Metro area
Jacksonville, FL
County
St. Johns County, FL
Website URL
joshuafrase.org/ 
Phone
(904) 821-4246
IRS details
EIN
59-7059890
Fiscal year end
December
Taxreturn type
Form 990
Year formed
1996
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
H90: Medical Specialty Research
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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