EIN 82-2469441

The Med13l Foundation

IRS 501(c) type
501(c)(3)
Num. employees
0
Year formed
2017
Most recent tax filings
2023-12-01
Description
Med13l provides support for research, advancement and raising awareness of the rare genetic disease, Med13l. Its mission is to raise awareness in the local and national community about the rare genetic disease and to provide funding for it. It coordinates and collaborates with the global scientific community to understand the function of the Med13l gene in order to develop effective treatments and a cure for Med13l syndrome. It aims to increase medical community and public awareness of the complexity and potential outcomes of this disease.
Also known as...
Med13l
Total revenues
$608,940
2023
202120222023$0$0.4m
Total expenses
$201,203
2023
202120222023$0$0.2m
Total assets
$739,788
2023
202120222023$0$0.4m$0.8m
Num. employees
0
2023
20212022202300.51

Program areas at The Med13l Foundation

Coordinate and collaborate with The global scientific community to understand The function of The Med13l gene in order to develop effective treatments and a cure for Med13l syndrome. Increase medical community and public awareness of The complexity and potential severity of Med13l syndrome. Provide educational and emotional support for those affected by Med13l syndrome. Raise money to fund our goals.

Grants made by The Med13l Foundation

GranteeGrant descriptionAmount
CombinedbrainStrategic Research Plan and Biospecimen Collection$25,787

Who funds The Med13l Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Network for GoodUnrestricted$27,617
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$10,700
PayPal Giving Fund$6,642

Personnel at The Med13l Foundation

NameTitleCompensation
Jennifer RobertsonSecretary$0
Nick SeaverPresident$0
Kelly SextonVice President$0
Katie Barry BoyschuckTreasurer$0
Lacey AkinsMember$0

Financials for The Med13l Foundation

RevenuesFYE 12/2023
Total grants, contributions, etc.$602,092
Program services$0
Investment income and dividends$15,732
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$-8,884
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$608,940

Form 990s for The Med13l Foundation

Fiscal year endingDate received by IRSFormPDF link
2023-122024-11-14990View PDF
2022-122023-09-02990View PDF
2021-122022-09-14990EZView PDF
Data update history
August 25, 2024
Updated personnel
Identified 2 new personnel
January 2, 2024
Received grants
Identified 1 new grant, including a grant for $1,529 from AmazonSmile Foundation
November 26, 2023
Received grants
Identified 1 new grant, including a grant for $60,438 from PayPal Giving Fund
November 16, 2023
Updated personnel
Identified 5 new personnel
November 13, 2023
Posted financials
Added Form 990 for fiscal year 2022
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Provides grantsConducts researchFundraising eventsFundraising races, competitions, and tournamentsTax deductible donationsNo full-time employeesAccepts online donations
General information
Address
17 Timber Dr
Barrington, NJ 08007
Metro area
Philadelphia-Camden-Wilmington, PA-NJ-DE-MD
County
Camden County, NJ
Website URL
med13l.org/ 
Phone
(856) 534-5470
IRS details
EIN
82-2469441
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2017
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G80: Specifically Named Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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