Program areas at The Multiple System Atrophy Coalition
Creation and production of material and promotional items to raise awareness of Multiple System Atrophy in The medical and lay communities.
Patient and caregiver education and support, including annual conference, support telephone line, dvds and printed educational material.
Research grant program to pinpoint a clear cause of Multiple System Atrophy and to identify a cure or effective therapies that slow, halt,or reverse The insidious progression of msa.
Grants made by The Multiple System Atrophy Coalition
Who funds The Multiple System Atrophy Coalition
Grants from foundations and other nonprofits
Personnel at The Multiple System Atrophy Coalition
| Name | Title | Compensation | Date of data |
|---|
| Joe Lindahl, Ma, Cae | Chief Executive Officer | | 2024-05-28 |
| Joseph Lindahl | Executive Director | $0 | 2024-10-30 |
| Elizabeth Turcza | Director of | | 2024-05-28 |
| Nicole Mehall | Director, Strategic | | 2024-05-28 |
| Jess Serafini | Marketing Manager | | 2024-05-28 |
| ...and 11 more key personnel |
Financials for The Multiple System Atrophy Coalition
| Revenues | FYE 12/2023 | FYE 12/2022 | % Change |
|---|
| Total grants, contributions, etc. | $1,186,812 | $1,394,761 | -14.9% |
| Program services | $0 | $0 | - |
| Investment income and dividends | $136,309 | $95,758 | 42.3% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $-61,283 | $-23,540 | -160.3% |
| Net income from fundraising events | $0 | $0 | - |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $0 | $0 | - |
| Total revenues | $1,261,838 | $1,466,979 | -14% |
Organizations like The Multiple System Atrophy Coalition
| Organization | Type | Location | Revenue |
|---|
| LiveLikeLou Foundation | 501(c)(3) | Oxford, OH | $2,796,333 |
| I Am Als | 501(c)(3) | Washington, DC | $2,326,778 |
| Miles for Migraine | 501(c)(3) | Jericho, VT | $1,647,652 |
| Davis Phinney Foundation | 501(c)(3) | Louisville, CO | $3,779,269 |
| Dysautonomia International | 501(c)(3) | East Moriches, NY | $1,221,343 |
| Myasthenia Gravis Foundation of America (MGFA) | 501(c)(3) | Westborough, MA | $3,555,325 |
| FSHD Society | 501(c)(3) | Randolph, MA | $4,455,414 |
| The Cure Starts Now | 501(c)(3) | Cincinnati, OH | $5,080,693 |
| Unite 2 Fight Paralysis | 501(c)(3) | Minneapolis, MN | $623,489 |
| CURE Epilepsy (CURE) | 501(c)(3) | Chicago, IL | $6,183,163 |
Data update history
January 11, 2025
Posted financials
Added Form 990 for fiscal year 2023
January 4, 2025
Received grants
Identified 3 new grant, including a grant for $17,962 from PayPal Giving Fund December 23, 2024
Used new vendors
Identified 1 new vendor, including
May 28, 2024
Updated personnel
Identified 15 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchNational levelCommunity engagement / volunteeringTax deductible donationsNo full-time employeesAccepts online donations
General information
- Address
- 1660 International Dr 600
- Mclean, VA 22102
- Metro area
- Washington-Arlington-Alexandria, DC-VA-MD-WV
- County
- Fairfax County, VA
- Website URL
- missionmsa.org/Â
- Phone
- (866) 737-4999
IRS details
- EIN
- 74-2926378
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 1999
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G50: Nerve, Muscle, and Bone Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
California AB-488 details
- AB 488 status
- May Operate or Solicit for Charitable Purposes
- Charity Registration status
- Current
- FTB status revoked
- Not revoked
- AG Registration Number
- CT0257455
- FTB Entity ID
- 4089284
- AB 488 data last updated ("as-of") date
- 2025-02-05
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