Program areas at The Myalgic Encephalomyelitis Action Network
Research and medical:we aim to grow The scientific field through outreach, education and patient-driven research so that treatments, diagnosis, and outcomes can improve for people with me.
#millionsmissing:#millionsmissing is our global effort to raise awareness and achieve rights for me/cfs patients. Since 2016, we have banded together every year to raise awareness and advocate for Action.
Digital advocacy and awareness:advocacy is a cornerstone of our work at #meaction. Every year, we take decisive steps to strengthen our voice with The us government through The national institute of health, The center for disease control & prevention, and The department of health and human services. We urge each agency to prioritize The health of people with me through accelerated research, clinical education, and a dedicated search for an fda-approved treatment. Influenced by The hiv/aids movement, our advocacy activities include participation in government committees, published petitions, open letters, meetings, peaceful protests, press conferences, advocacy days and more.
Who funds The Myalgic Encephalomyelitis Action Network
Grants from foundations and other nonprofits
Personnel at The Myalgic Encephalomyelitis Action Network
| Name | Title | Compensation | Date of data |
|---|
| Jennifer Brea | Board Member | | 2024-04-15 |
| Laurie Jones | Executive Director | $75,000 | 2024-04-15 |
| Ben Hsuborger | U.s Advocacy Director | | 2024-04-15 |
| Erin Roediger | Programs and Campaigns Director | | 2024-04-15 |
| Jaime Seltzer | Scientific Director | | 2024-04-15 |
| ...and 4 more key personnel |
Financials for The Myalgic Encephalomyelitis Action Network
| Revenues | FYE 09/2023 | FYE 09/2022 | % Change |
|---|
| Total grants, contributions, etc. | $839,488 | $709,854 | 18.3% |
| Program services | $0 | $0 | - |
| Investment income and dividends | $0 | $0 | - |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $0 | $0 | - |
| Net income from fundraising events | $0 | $0 | - |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $20,145 | $-267 | 7644.9% |
| Total revenues | $859,633 | $709,587 | 21.1% |
Organizations like The Myalgic Encephalomyelitis Action Network
| Organization | Type | Location | Revenue |
|---|
| Uplifting Athletes | 501(c)(3) | Doylestown, PA | $1,572,398 |
| I Am Als | 501(c)(3) | Washington, DC | $2,326,778 |
| Davis Phinney Foundation | 501(c)(3) | Louisville, CO | $3,779,269 |
| Unite 2 Fight Paralysis | 501(c)(3) | Minneapolis, MN | $623,489 |
| Alliance To Cure Cavernous Malformations | 501(c)(3) | Charlottesville, VA | $1,292,022 |
| Myasthenia Gravis Foundation of America (MGFA) | 501(c)(3) | Westborough, MA | $3,555,325 |
| Bone Health and Osteoporosis Foundation (OF) | 501(c)(3) | Arlington, VA | $2,807,901 |
| Jett Foundation | 501(c)(3) | Plymouth, MA | $3,537,013 |
| Pennsylvania Tourette Syndrome Alliance | 501(c)(3) | Hanover, PA | $281,894 |
| Epilepsy Foundation of Greater Chicago | 501(c)(3) | Chicago, IL | $2,363,979 |
Data update history
September 30, 2024
Posted financials
Added Form 990 for fiscal year 2023
September 24, 2024
Updated personnel
Identified 1 new personnel
April 15, 2024
Updated personnel
Identified 11 new personnel
January 2, 2024
Received grants
Identified 1 new grant, including a grant for $1,171 from AmazonSmile Foundation Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsHeadquarter / parent organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
Political advocacyConducts researchNational levelTax deductible donationsAccepts online donations
General information
- Address
- 1217 Wilshire Blvd 3639
- Santa Monica, CA 90403
- Metro area
- Los Angeles-Long Beach-Anaheim, CA
- County
- Los Angeles County, CA
- Website URL
- meaction.net/Â
- Phone
- (626) 354-7833
IRS details
- EIN
- 47-4011296
- Fiscal year end
- September
- Taxreturn type
- Form 990
- Year formed
- 2014
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G50: Nerve, Muscle, and Bone Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
California AB-488 details
- AB 488 status
- May Not Operate or Solicit for Charitable Purposes
- Charity Registration status
- Delinquent
- FTB status revoked
- Not revoked
- AG Registration Number
- CT0271347
- FTB Entity ID
- None yet
- AB 488 data last updated ("as-of") date
- 2025-03-05
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