EIN 88-2591503

The N 1 Collaborative

IRS 501(c) type
501(c)(3)
Num. employees
2
Year formed
2022
Most recent tax filings
2023-12-01
Description
The N 1 Collaborative's mission is to provide routine and rapid access to individualized medicines for rare disease patients worldwide. They educate the global community on individualized medicines by expanding workgroups, such as patient identification and institutional implementation, and establishing goals. The N 1 Collaborative also supports scientific research and development of individualized medicines through pilot databases that aggregate and disseminate preclinical and clinical data. They scope future data to continue their efforts in supporting patients with rare diseases.
Total revenues
$397,502
2023
Total expenses
$279,607
2023
Total assets
$120,320
2023
Num. employees
2
2023

Program areas at The N 1 Collaborative

To establish standards and ensure consistency across diverse individualized treatment programs worldwide. Specific example accomplishment: best practices have been disseminated through Collaborative efforts, including workgroups, seminars, peer-reviewed publications, and in-person meetings. This exchange of knowledge has directly benefitted our community of 500 members, comprising academic researchers, clinicians, patients, and industry stakeholders. Additionally, non-members seeking educational resources for individualized medicines can freely access The information.
To facilitate connections and collaboration among stakeholders involved in The development of individualized medicines via a Collaborative platform where stakeholders offering goods, services, referrals, and support can connect with those seeking them, thereby fostering improved communication and advancement within The field. Specific example accomplishment: validated The necessity for The described platform, initiated The formulation of project scopes, engaged in discussions with key stakeholders, and began developing initial resources. Approximately 20 people directly benefited from initial scoping activities, with a significant number of direct and indirect beneficiaries anticipated as The project develops further.
To aggregate and disseminate preclinical and clinical data to enhance The safety and efficacy of individualized treatments and support regulatory decision-making. Specific example: initiated pilot projects to establish preclinical and clinical databases, aiming to identify The minimum viable structure required for such databases. This endeavor allowed us to gain insights into The technical, regulatory and legal frameworks essential for supporting these databases. Approximately thirty people directly benefited from The pilot projects, with a significant number of indirect beneficiaries anticipated once The pilot is expanded to The public.

Who funds The N 1 Collaborative

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
The Termeer FoundationTermeer Scholar Award$25,000

Personnel at The N 1 Collaborative

NameTitleCompensation
Winston YanPresident$0

Financials for The N 1 Collaborative

RevenuesFYE 12/2023
Total grants, contributions, etc.$397,502
Program services$0
Investment income and dividends$0
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$397,502

Form 990s for The N 1 Collaborative

Fiscal year endingDate received by IRSFormPDF link
2023-122024-08-26990View PDF
2022-122023-11-13990EZView PDF
Data update history
July 10, 2024
Received grants
Identified 1 new grant, including a grant for $25,000 from The Termeer Foundation
January 18, 2024
Posted financials
Added Form 990EZ for fiscal year 2022
January 11, 2024
Updated personnel
Identified 7 new personnel
December 28, 2023
Used new vendors
Identified 1 new vendor, including
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
Health
Characteristics
Conducts researchTax deductible donationsAccepts online donations
General information
Address
7 Carole Pl
Somerville, MA 02143
Metro area
Boston-Cambridge-Newton, MA-NH
County
Middlesex County, MA
Website URL
n1collaborative.org/ 
Phone
(772) 678-9669
IRS details
EIN
88-2591503
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2022
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G00: Disease, Disorders, Medical Disciplines: General
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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