EIN 27-3862623

The Orphan Disease Pathway Project

IRS 501(c) type
501(c)(3)
Num. employees
0
Year formed
2010
Most recent tax filings
2022-12-01
Description
The Orphan Disease Pathway Project aims to aid in discovering cures and treatments for rare diseases while supporting research. The organization has made donations to The Penn Center for Orphan Disease Research and Therapy at The School of Medicine of The University of Pennsylvania. It is located in Rocky Hill, CT.
Total revenues
$1,702,639
2022
Total expenses
$2,185,270
2022
Total assets
$79,380
2022
Num. employees
0
2022

Program areas at The Orphan Disease Pathway Project

The foundation made contributions to The penn center for Orphan Disease research and therapy at The school of medicine of The university of Pennsylvania.

Grants made by The Orphan Disease Pathway Project

GranteeGrant descriptionAmount
University of Pennsylvania (Penn)The Penn Center for Orphan Disease$2,150,000

Who funds The Orphan Disease Pathway Project

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
The Seaman Family FoundationSupport Disease Research for Orphans.$100,000
Jill and Mark Rachesky Charitable FoundationGeneral Charitable Purposes$70,000
Schwab Charitable FundHealth$52,500
...and 8 more grants received

Personnel at The Orphan Disease Pathway Project

NameTitleCompensation
George A WeissTrustee$0

Financials for The Orphan Disease Pathway Project

RevenuesFYE 12/2022
Total grants, contributions, etc.$750,561
Program services$0
Investment income and dividends$2
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$107
Net income from fundraising events$951,969
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$1,702,639

Form 990s for The Orphan Disease Pathway Project

Fiscal year endingDate received by IRSFormPDF link
2022-122023-11-15990View PDF
2021-122022-11-14990View PDF
2020-122021-11-15990View PDF
2019-122021-04-02990View PDF
2018-122020-02-06990View PDF
...and 8 more Form 990s

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Cured NFPBuffalo Grove, IL$494,876
Rolf Benirschke Legacy FoundationDel Mar, CA$681,655
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Histiocytosis AssociationPitman, NJ$987,719
National Pku AllianceNew York, NY$1,305,823
Data update history
May 18, 2024
Received grants
Identified 1 new grant, including a grant for $10,000 from FJC - A Foundation of Philanthropic Funds
January 19, 2024
Posted financials
Added Form 990 for fiscal year 2022
December 31, 2023
Received grants
Identified 8 new grant, including a grant for $100,000 from The Seaman Family Foundation
December 29, 2023
Used new vendors
Identified 1 new vendor, including
October 22, 2023
Received grants
Identified 4 new grant, including a grant for $50,000 from Gray Foundation
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Provides grantsConducts researchFundraising eventsGala fundraisersTax deductible donationsNo full-time employees
General information
Address
400 Capital Blvd Suite 201
Rocky Hill, CT 06067
Metro area
Hartford-East Hartford-Middletown, CT
County
09110
Phone
(860) 240-8900
IRS details
EIN
27-3862623
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2010
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G80: Specifically Named Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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