Program areas at The Scleroderma Foundationsouthern of California
Support: provide patient support and education to over 1000 patients affected by Scleroderma in California we work to build overall awareness of The disease. The Foundation now has 23 community support groups. Most groups meet bi-monthly and have an average attendance of 25-20 people. In 2022 many of our support groups transitioned back to in-person meetings and we were able to grow to reach approximately 2000+ patients/caregivers and family members. We will continue to provide online meetings as well as in-person meetings. Support groups provide a forum to share feelings, concerns, information, as well as a place to offer peer support and encouragement. Solicitations or research projects are not conducted at support group meetings. Support groups often feature speakers specializing in Scleroderma or related topics. All support groups are free of charge and open to everyone, including patients, caregivers, family and friends.
Research:we continue to seek research projects to fund to find a cure to end Scleroderma.
Education:in 2022 The Scleroderma Foundation hosted an online education event for patients, family members and caregivers with The total number who benefitted approximately 500.for medical professionals to help them understand and properly diagnosis Scleroderma early, and for patients to help them and cope and thrive while living with Scleroderma.
Grants made by The Scleroderma Foundationsouthern of California
Who funds The Scleroderma Foundationsouthern of California
Grants from foundations and other nonprofits
Personnel at The Scleroderma Foundationsouthern of California
Name | Title | Compensation | Date of data |
---|
Andrew Emmett | Executive Director | $115,000 | 2022-12-31 |
Dan Furst | Acting President | $0 | 2023-11-15 |
Peggy Hickman | Past President / President / Treasurer / Director | $0 | 2022-12-31 |
Laura Fuhrman | Vice President / Director | $0 | 2022-12-31 |
Chris Pettit | Vice President / Treasurer / President | $0 | 2022-12-31 |
...and 9 more key personnel |
Financials for The Scleroderma Foundationsouthern of California
Revenues | FYE 12/2022 | FYE 12/2021 | % Change |
---|
Total grants, contributions, etc. | $283,435 | $422,662 | -32.9% |
Program services | $0 | $0 | - |
Investment income and dividends | $0 | $0 | - |
Tax-exempt bond proceeds | $0 | $0 | - |
Royalty revenue | $0 | $0 | - |
Net rental income | $0 | $0 | - |
Net gain from sale of non-inventory assets | $0 | $0 | - |
Net income from fundraising events | $-6,390 | $-228 | -2702.6% |
Net income from gaming activities | $0 | $160 | -100% |
Net income from sales of inventory | $0 | $0 | - |
Miscellaneous revenues | $0 | $0 | - |
Total revenues | $277,045 | $422,594 | -34.4% |
Organizations like The Scleroderma Foundationsouthern of California
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Hear Indiana | 501(c)(3) | Indianapolis, IN | $1,148,439 |
Brain Injury Association of Maryland | 501(c)(3) | Gwynn Oak, MD | $727,401 |
Prevent Blindness Texas | 501(c)(3) | Houston, TX | $1,287,443 |
Brain Injury Association of Ohio | 501(c)(3) | Columbus, OH | $356,317 |
National Kidney Foundation of Maryland | 501(c)(3) | Lutherville, MD | $96,316 |
Brain Injury Association of Kansas and Greater Kansas City | 501(c)(3) | Overland Park, KS | $323,640 |
Bleeding Disorders Foundation of North Carolina | 501(c)(3) | Morrisville, NC | $644,892 |
Scleroderma Foundation of Greater Chicago | 501(c)(3) | Chicago, IL | $427,266 |
Brain Injury Association of Mississippi | 501(c)(3) | Jackson, MS | $297,655 |
Prevent Blindness Iowa | 501(c)(3) | Des Moines, IA | $214,688 |
Data update history
December 30, 2023
Received grants
December 28, 2023
Posted financials
Added Form 990 for fiscal year 2022
December 24, 2023
Used new vendors
Identified 1 new vendor, including
August 21, 2023
Received grants
Identified 1 new grant, including a grant for $1,000 from The Zelman Family Fund August 17, 2023
Posted financials
Added Form 990 for fiscal year 2021
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchFundraising eventsPeer-to-peer fundraisingState / local levelTax deductible donations
General information
- Address
- 8929 S Sepulveda Blvd 401
- Los Angeles, CA 90045
- Metro area
- Los Angeles-Long Beach-Anaheim, CA
- Website URL
- myscleroderma.org/Â
- Phone
- (424) 227-6475
IRS details
- EIN
- 77-0229244
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 1989
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G40: Diseases of Specific Organs
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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