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EIN 45-5308117

The Snow Foundation

IRS 501(c) type
501(c)(3)
Num. employees
0
City
Clayton
State
Missouri
Year formed
2012
Most recent tax filings
2023-12-01
NTEE code, primary
U00: Science and Technology Research: General
Description
The Snow Foundation provides financial support for Wolfram Syndrome research and serves as a collective voice for patients. Its mission is to work towards a cure for Wolfram Syndrome and develop novel therapies for diabetes, vision loss, hearing loss, and neurodegeneration. The organization focuses on three pillars: research, patients, and mobilization of the WS community. In 2022, The Snow Foundation continued efforts in research and funding by seeking out the best possible worldwide research with descriptive verbs.
Also known as...
The Jack and JT Snow Scientific Research Foundation
Total revenues
$477,435
2023
Total expenses
$224,873
2023
Total assets
$603,694
2023
Num. employees
0
2023

Program areas at The Snow Foundation

The Foundation supports and coordinates international collaborative research efforts. The Foundation is focused on fueling knowledge, speeding better treatments and symptom management therapies, and driving enhancements in The health care delivery for wolfram syndrome patients.the Foundation also encourages The entire wolfram syndrome community to come together and share common life experiences, education and mutual aid. By providing these critical resources and support services, The Foundation enables wolfram syndrome patients, their families and caregivers to powerfully advocate for what they need, when and how they need it.

Grants made by The Snow Foundation

GranteeGrant descriptionAmount
Washington University School of Medicine Health Admin ProgramPrilenia Research$0

Who funds The Snow Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Network for GoodUnrestricted$23,438
Theodore Theodore A Kienstra FoundationGeneral Support of Charitable Activities$2,500
AmazonSmile FoundationGeneral Support$1,334
...and 2 more grants received

Personnel at The Snow Foundation

NameTitleCompensation
Stephanie GebelChairman and Chief Executive Officer / Founder and Chair and Executive Director / Founder and Chairman$20,000
Jack Thomas SnowDirector Communications$0
Jt SnowDirector of Communications$0
Saad NaseerDirector Medical Advisor$0
Tod StephensSecretary$0
...and 4 more key personnel

Financials for The Snow Foundation

RevenuesFYE 12/2023
Total grants, contributions, etc.$489,988
Program services$0
Investment income and dividends$0
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$-12,553
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$477,435

Form 990s for The Snow Foundation

Fiscal year endingDate received by IRSFormPDF link
2023-122024-09-30990View PDF
2022-122023-05-10990View PDF
2021-122022-05-04990View PDF
2020-122021-05-21990View PDF
2019-122021-02-19990View PDF
...and 6 more Form 990s

Organizations like The Snow Foundation

OrganizationLocationRevenue
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Choroideremia Research FoundationSpringfield, MA$560,892
Ataxia Telangiectasia Children's ProjectCoconut Creek, FL$1,567,615
Hydropower Foundation (HRF)Littleton, CO$365,300
The Soul Phone FoundationChillicothe, OH$201,288
The Alex FoundationSwampscott, MA$314,445
The Plantrician ProjectBoynton Beach, FL$996,185
Cato Neonatal InnovationsDelray Beach, FL$288,186
Pasteur FoundationNew York, NY$1,503,609
The Amyloidosis FoundationClarkston, MI$710,435
Data update history
December 5, 2024
Posted financials
Added Form 990 for fiscal year 2023
November 27, 2024
Updated personnel
Identified 2 new personnel
November 27, 2024
Used new vendors
Identified 1 new vendor, including
January 2, 2024
Received grants
Identified 1 new grant, including a grant for $1,334 from AmazonSmile Foundation
November 25, 2023
Posted financials
Added Form 990 for fiscal year 2021
Nonprofit Types
Grantmaking organizationsDisease research fundraisersResearch centersCharities
Issues
Science and technologyDiseases and disorders
Characteristics
Provides grantsConducts researchFundraising eventsOperates internationallyFundraising races, competitions, and tournamentsTax deductible donationsNo full-time employeesAccepts online donations
General information
Address
PO Box 50224
Clayton, MO 63105
Metro area
St. Louis, MO-IL
County
St. Louis County, MO
Website URL
thesnowfoundation.org/ 
Phone
(636) 448-4134
IRS details
EIN
45-5308117
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2012
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
U00: Science and Technology Research: General
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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