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EIN 83-3095299

Theos Village The TBCK Foundation

IRS 501(c) type
501(c)(3)
Num. employees
0
City
Pittsburgh
State
Pennsylvania
Year formed
2018
Most recent tax filings
2023-12-01
NTEE code, primary
G80: Specifically Named Diseases
Description
The Theos Village The TBCK Foundation advances research and advocates for rare disease and disability to support families impacted by TBCK syndrome. It connects families and supports research for those affected by the rare genetic disease, TBCK.
Total revenues
$268,612
2023
Total expenses
$155,456
2023
Total assets
$570,135
2023
Num. employees
0
2023

Program areas at Theos Village The TBCK Foundation

Expanded virtual support group for TBCK Families;Launched TBCK Patient Registry; Launched updated TBCK Syndrome educational resources; Hosted Virtual Conference for TBCK Families, Clinicians, and Scientists; Expanded Board of Directors, Expanded Scientific Advisory Board; DEI initiatives launched (website, social media, etc.)

Grants made by Theos Village The TBCK Foundation

GranteeAmount
Perelman School of Medicine at the University of Pennsylvania$20,025

Who funds Theos Village The TBCK Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
The Glickenhaus FoundationTo Achieve Charitable Purpose$1,000
AmazonSmile FoundationGeneral Support$690

Personnel at Theos Village The TBCK Foundation

NameTitleCompensation
Nicole StusickPresident Secretary$15,000
Sarah DavidTreasurer$0
David BinkleyVice President$0
Betsy HomanPast Treasurer$0

Financials for Theos Village The TBCK Foundation

RevenuesFYE 12/2023
Total grants, contributions, etc.$268,612
Program services$0
Investment income and dividends$0
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$268,612

Form 990s for Theos Village The TBCK Foundation

Fiscal year endingDate received by IRSFormPDF link
2023-122024-08-05990View PDF
2022-122023-11-03990View PDF
2021-122022-08-31990View PDF
Data update history
May 18, 2024
Received grants
Identified 1 new grant, including a grant for $1,000 from The Glickenhaus Foundation
December 31, 2023
Posted financials
Added Form 990 for fiscal year 2022
December 31, 2023
Updated personnel
Identified 3 new personnel
November 25, 2023
Posted financials
Added Form 990 for fiscal year 2021
July 22, 2023
Received grants
Identified 1 new grant, including a grant for $1,500 from Enterprise Holdings Foundation
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchTax deductible donationsNo full-time employeesAccepts online donations
General information
Address
PO Box 13220
Pittsburgh, PA 15243
Metro area
Pittsburgh, PA
County
Allegheny County, PA
Website URL
tbckfoundation.org/ 
IRS details
EIN
83-3095299
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2018
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G80: Specifically Named Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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