EIN 23-7191992

Tourette Association of America

IRS 501(c) type
501(c)(3)
Num. employees
34
Year formed
1972
Most recent tax filings
2023-02-01
Description
Tourette Association of America raises awareness, educates professionals and advocates for public health policies to improve the lives of people with Tourette Syndrome.
Related structure
Tourette Association of America is a parent organization to a group of 29 other organizations.
Also known as...
Tourette Syndrome Associations
Total revenues
$4,883,886
2023
Total expenses
$5,207,884
2023
Total assets
$11,157,402
2023
Num. employees
34
2023

Program areas at Tourette Association of America

Public education - provide education and awareness by raising public awareness and fostering social acceptance. Educating professionals to better serve the needs of children, adults and families challenged by Tourette and tic disorders. Advocating for public policies and services that promote positive school, work and social environments. Providing help, hope and a supportive community across the nation. Empowering our community to deal with the complexities of this spectrum of disorders.
Centers for disease control (cdc) partnership - the Association and cdc work together to provide expert education about Tourette syndrome to physicians and allied professional and to encourage physicians to apply to the associations ' referral lists. Includes programs to educate schools and communities about Tourette syndrome.
Research & medical programs - working to advance scientific understanding, treatment options and care options for the disorder by providing funding for research investigations in the areas of neurosciences, genetics, behaviorial therapy, clinical trials.
The Tourette syndrome behavior training institute ( "ts- bti") was created to expand the number of healthcare professionals competently trained in behavior therapy for Tourette syndrome and other tic disorders.
Professional education - provides for the education and awareness of Tourette syndrome to medical professionals, through among other things, seminars and distribution of research updates.

Grants made by Tourette Association of America

GranteeGrant descriptionAmount
West Virginia University ResearchResearch$150,000
Stanford University / The Board of Trustees of the Leland Stanford Junior UniversityResearch$149,600
American Brain FoundationResearch$100,000

Who funds Tourette Association of America

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Morgan Stanley Global Impact Funding TrustUnrestricted General Support$381,132
Schwab Charitable FundHealth$177,400
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$155,195
...and 50 more grants received totalling $1,552,510

Personnel at Tourette Association of America

NameTitleCompensation
Amand AtaltyChief Executive Officer - President
Amanda TaltyChief Executive Officer$267,940
Sonja Mason-VidalVice President , Finance$144,687
Karon WilliamsVice President Resource Development and Marketi$170,341
Diana FelnerVice President , Public Policy$136,279
...and 13 more key personnel

Financials for Tourette Association of America

RevenuesFYE 02/2023
Total grants, contributions, etc.$4,496,697
Program services$171,515
Investment income and dividends$190,767
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$-49,127
Net income from fundraising events$-32,157
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$106,191
Total revenues$4,883,886

Form 990s for Tourette Association of America

Fiscal year endingDate received by IRSFormPDF link
2023-022023-12-13990View PDF
2022-022022-12-14990View PDF
2021-022021-10-29990View PDF
2020-022020-11-05990View PDF
2019-022019-09-27990View PDF
...and 8 more Form 990s
Data update history
August 1, 2024
Posted financials
Added Form 990N for fiscal year 2024
July 23, 2024
Received grants
Identified 9 new grant, including a grant for $90,000 from Jewish Community Federation and Endowment Fund
May 18, 2024
Received grants
Identified 4 new grant, including a grant for $20,041 from American Online Giving Foundation
April 19, 2024
Updated personnel
Identified 1 new personnel
February 4, 2024
Received grants
Identified 22 new grant, including a grant for $100,000 from Igiftfund
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsHeadquarter / parent organizationsCharities
Issues
HealthMental healthDiseases and disorders
Characteristics
Political advocacyConducts researchLobbyingFundraising eventsOperates internationallyNational levelReceives government fundingEndowed supportCommunity engagement / volunteeringGala fundraisersFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
Address
42-40 Bell Blvd
Bayside, NY 11361
Metro area
New York-Newark-Jersey City, NY-NJ-PA
County
Queens County, NY
Website URL
tourette.org/ 
Phone
(718) 224-2999
Facebook page
TSAUSA 
Twitter profile
@touretteassn 
IRS details
EIN
23-7191992
Fiscal year end
February
Taxreturn type
Form 990
Year formed
1972
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Parent of group exemption
California AB-488 details
AB 488 status
May Operate or Solicit for Charitable Purposes
Charity Registration status
Current - Awaiting Reporting
FTB status revoked
Not revoked
AG Registration Number
048554
FTB Entity ID
1134953
AB 488 data last updated ("as-of") date
2024-10-16
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