EIN 23-7191992

Tourette Association of America

IRS 501(c) type
501(c)(3)
Num. employees
38
Year formed
1972
Most recent tax filings
2024-02-01
Description
Tourette Association of America raises awareness, educates professionals and advocates for public health policies to improve the lives of people with Tourette Syndrome.
Related structure
Tourette Association of America is a parent organization to a group of 29 other organizations.
Also known as...
Tourette Syndrome Associations
Total revenues
$5,048,195
2024
Total expenses
$6,604,537
2024
Total assets
$10,414,671
2024
Num. employees
38
2024

Program areas at Tourette Association of America

Public education - provide education and awareness by raising public awareness and fostering social acceptance. Educating professionals to better serve the needs of children, adults and families challenged by Tourette and tic disorders. Advocating for public policies and services that promote positive school, work and social environments. Providing help, hope and a supportive community across the nation. Empowering our community to deal with the complexities of this spectrum of disorders.
Centers for disease control (cdc) partnership - the Association and cdc work together to provide expert education about Tourette syndrome to physicians and allied professional and to encourage physicians to apply to the associations ' referral lists. Includes programs to educate schools and communities about Tourette syndrome.
Research & medical programs - working to advance scientific understanding, treatment options and care options for the disorder by providing funding for research investigations in the areas of neurosciences, genetics, behaviorial therapy, clinical trials.
The Tourette syndrome behavior training institute ( "ts- bti") was created to expand the number of healthcare professionals competently trained in behavior therapy for Tourette syndrome and other tic disorders.
Professional education - provides for the education and awareness of Tourette syndrome to medical professionals, through among other things, seminars and distribution of research updates.

Grants made by Tourette Association of America

GranteeGrant descriptionAmount
Cincinnati Children's Hospital Medical Center (CCHMC)Research$150,000
Vanderbilt University Medical CenterResearch$150,000
Yale UniversityResearch$150,000
...and 2 more grants made

Who funds Tourette Association of America

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Morgan Stanley Global Impact Funding TrustUnrestricted General Support$381,132
IgiftfundGeneral Support$200,000
Schwab Charitable FundHealth$177,400
...and 50 more grants received totalling $1,642,734

Personnel at Tourette Association of America

NameTitleCompensation
Amand AtaltyChief Executive Officer - President
Amanda TaltyPresident and Chief Executive Officer$288,421
Sonja Mason-VidalVice President , Finance and Administration$155,533
James SaraciniVice President , Marketing and Communications
Jay NicholsVice President of Public Policy
...and 31 more key personnel

Financials for Tourette Association of America

RevenuesFYE 02/2024
Total grants, contributions, etc.$4,466,745
Program services$138,528
Investment income and dividends$280,265
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$206,401
Net income from fundraising events$-43,744
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$5,048,195

Form 990s for Tourette Association of America

Fiscal year endingDate received by IRSFormPDF link
2024-022024-10-14990View PDF
2023-022023-12-13990View PDF
2022-022022-12-14990View PDF
2021-022021-10-29990View PDF
2020-022020-11-05990View PDF
...and 9 more Form 990s

Organizations like Tourette Association of America

OrganizationLocationRevenue
Epilepsy FoundationBowie, MD$17,841,214
The Cure Starts NowCincinnati, OH$5,080,693
Cure Sma (CSMA)Elk Grove Village, IL$13,668,775
The Als Association - Greater New York ChapterNew York, NY$4,847,061
Epilepsy Foundation New EnglandLowell, MA$6,573,455
United Spinal AssociationKew Gardens, NY$9,106,063
Epilepsy Foundation of TexasHouston, TX$1,612,999
Jett FoundationPlymouth, MA$3,537,013
American Parkinson Disease Association (APDA)Staten Island, NY$12,931,965
GO2 For Lung Cancer (ALCF)Washington, DC$12,804,058
Data update history
November 26, 2024
Updated personnel
Identified 20 new personnel
October 21, 2024
Received grants
Identified 3 new grant, including a grant for $10,000 from Kate J Solomon Foundation
August 1, 2024
Posted financials
Added Form 990N for fiscal year 2024
July 23, 2024
Received grants
Identified 9 new grant, including a grant for $90,000 from Jewish Community Federation and Endowment Fund
May 18, 2024
Received grants
Identified 4 new grant, including a grant for $20,041 from American Online Giving Foundation
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsHeadquarter / parent organizationsCharities
Issues
HealthMental healthDiseases and disorders
Characteristics
Political advocacyConducts researchLobbyingFundraising eventsNational levelReceives government fundingEndowed supportCommunity engagement / volunteeringGala fundraisersFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
Address
42-40 Bell Blvd
Bayside, NY 11361
Metro area
New York-Newark-Jersey City, NY-NJ-PA
County
Queens County, NY
Website URL
tourette.org/ 
Phone
(718) 224-2999
Facebook page
TSAUSA 
Twitter profile
@touretteassn 
IRS details
EIN
23-7191992
Fiscal year end
February
Taxreturn type
Form 990
Year formed
1972
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Parent of group exemption
California AB-488 details
AB 488 status
May Operate or Solicit for Charitable Purposes
Charity Registration status
Current - Awaiting Reporting
FTB status revoked
Not revoked
AG Registration Number
048554
FTB Entity ID
1134953
AB 488 data last updated ("as-of") date
2024-12-04
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