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EIN 81-3669443

United MSD Foundation

IRS 501(c) type
501(c)(3)
Num. employees
9
City
Biloxi
State
Mississippi
Year formed
2016
Most recent tax filings
2023-12-01
NTEE code, primary
G20: Birth Defects and Genetic Diseases
Description
The United MSD Foundation champions awareness and advances research aimed at curing Multiple Sulfatase Deficiency (MSD). This nonprofit organization supports an international community of MSD families, researchers, and care providers by funding innovative treatments and facilitating educational resources. The foundation prioritizes initiatives such as first-in-human gene therapy trials in collaboration with the Children’s Hospital of Philadelphia.
Total revenues
$305,138
2023
Total expenses
$638,180
2023
Total assets
$287,939
2023
Num. employees
9
2023

Program areas at United MSD Foundation

Generating funds to provide awareness and reasearch a cure for MSD

Grants made by United MSD Foundation

GranteeGrant descriptionAmount
Genetic AllianceSample Management$6,197

Who funds United MSD Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Community Foundation of Central MODiseases & Medical$33,730
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$17,750
National Philanthropic TrustPublic, Societal Benefit$10,000
...and 7 more grants received

Personnel at United MSD Foundation

NameTitleCompensation
Sarah Cortell VandersypenExecutive Director
Dr. Lars Schlotawa, MDInternational Medical Director
Dr. Rebecca Ahrens-Nicklas, MD, PHDUs Based Medical Director
Amber OlsenResearch Director and Founder$0
John EwenPresident$0
...and 9 more key personnel

Financials for United MSD Foundation

RevenuesFYE 12/2023
Total grants, contributions, etc.$302,819
Program services$0
Investment income and dividends$2,156
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$163
Total revenues$305,138

Form 990s for United MSD Foundation

Fiscal year endingDate received by IRSFormPDF link
2023-122024-07-18990View PDF
2022-122023-08-15990View PDF
2021-122022-11-15990View PDF
2020-122021-10-19990View PDF
2019-122021-02-19990View PDF
...and 2 more Form 990s
Data update history
November 26, 2024
Received grants
Identified 2 new grant, including a grant for $5,000 from Ringen Fund 4006-70-44
August 31, 2024
Posted financials
Added Form 990 for fiscal year 2023
August 29, 2024
Updated personnel
Identified 2 new personnel
July 23, 2024
Received grants
Identified 2 new grant, including a grant for $9,920 from American Online Giving Foundation
December 26, 2023
Received grants
Identified 4 new grant, including a grant for $33,730 from Community Foundation of Central MO
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Provides grantsConducts researchFundraising eventsPeer-to-peer fundraisingCommunity engagement / volunteeringFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
Address
PO Box 806
Biloxi, MS 39533
Metro area
Gulfport-Biloxi, MS
County
Harrison County, MS
Website URL
curemsd.org/ 
Phone
(228) 295-7084
IRS details
EIN
81-3669443
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2016
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G20: Birth Defects and Genetic Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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