| Grantee | Grant description | Grant year | Amount |
|---|---|---|---|
| North Carolina Spinal Cord Injury Association | Permobil Foundation Chapter Grants | 2023-06 | $6,000 |
| Greater Kansas City Spinal Cord Injury Association | Numotion Chapter Grants and Permobil Foundation Chapter Grant | 2023-06 | $5,500 |
| Grantmaker | Grantmaker tax period | Description | Amount |
|---|---|---|---|
| NuMotion Foundation | 2022-12 | Unrestricted | $75,000 |
| The Alexion Charitable Foundation | 2023-12 | The Grant Will Be Used To Support United Spinal Associations Ongoing Community Support Resource Center (CSRC) Operations and Its Resulting Impact on the Wheelchair User Disability Community, Especially Those Affected By Neurological Diseases and Disorders. the CSRC Program Is Designed To Offer "high Touch" Personalized Responses and Specialized Virtual Resources Meeting the Unique Needs of Wheelchair Users Living With Paralysis, Mobility Impairments, Spinal Cord Injury (Sci), and Rare Diseases To Reach Their Highest Potential, Remain Independent, Healthy, and Active Members of the Community and Workforce. | $33,000 |
| Advanced Medical Technology Association (AdvaMed) | 2022-12 | Program Support | $30,000 |
| ...and 18 more grants received totalling $250,211 | |||
| Name | Title | Compensation | Date of data |
|---|---|---|---|
| Vincenzo Piscopo | President and Chief Executive Officer | $210,578 | 2024-05-15 |
| Abby Ross | Chief Operating Officer | $136,295 | 2023-06-30 |
| Tom Scott | Chief Marketing Officer / Vice President of Inform | $114,408 | 2023-06-30 |
| Alexandra Bennewith | Vice President , Government Relations / Vice President of Government Relations | $130,462 | 2023-06-30 |
| James Weisman | General Counsel | $126,542 | 2022-06-30 |
| ...and 12 more key personnel | |||
| Revenues | FYE 06/2023 |
|---|---|
| Total grants, contributions, etc. | $6,238,671 |
| Program services | $2,467,869 |
| Investment income and dividends | $2,208 |
| Tax-exempt bond proceeds | $0 |
| Royalty revenue | $326,646 |
| Net rental income | $28,000 |
| Net gain from sale of non-inventory assets | $5,640 |
| Net income from fundraising events | $0 |
| Net income from gaming activities | $0 |
| Net income from sales of inventory | $0 |
| Miscellaneous revenues | $37,029 |
| Total revenues | $9,106,063 |
| Fiscal year ending | Date received by IRS | Form | PDF link |
|---|---|---|---|
| 2023-06 | 2024-05-15 | 990 | View PDF |
| 2022-06 | 2023-05-11 | 990 | View PDF |
| 2021-06 | 2022-05-13 | 990 | View PDF |
| 2020-06 | 2021-05-26 | 990 | View PDF |
| 2019-06 | 2021-05-26 | 990 | View PDF |
| ...and 13 more Form 990s | |||
| Organization | Type | Location | Revenue |
|---|---|---|---|
| Tourette Association of America | 501(c)(3) | Bayside, NY | $4,883,886 |
| Epilepsy Foundation | 501(c)(3) | Bowie, MD | $17,841,214 |
| Arthritis Foundation Upper Midwest Region | 501(c)(3) | St Paul, MN | $2,891,319 |
| Cure Sma (CSMA) | 501(c)(3) | Elk Grove Village, IL | $13,668,775 |
| The Als Association - Greater New York Chapter | 501(c)(3) | New York, NY | $4,837,719 |
| Epilepsy Foundation New England | 501(c)(3) | Lowell, MA | $6,573,455 |
| Children's Tumor Foundation | 501(c)(3) | New York, NY | $16,990,325 |
| Autism Speaks | 501(c)(3) | Washington, DC | $36,262,685 |
| Lupus Foundation of America | 501(c)(3) | Washington, DC | $17,263,965 |
| American Parkinson Disease Association (APDA) | 501(c)(3) | Staten Island, NY | $12,931,965 |
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