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EIN 26-1577154

Usher Syndrome Society

IRS 501(c) type
501(c)(3)
Num. employees
0
City
Needham
State
Massachusetts
Year formed
2008
Most recent tax filings
2023-12-01
NTEE code, primary
G40: Diseases of Specific Organs
Description
Raise money for research programs dedicated to finding new therapies and cures for childhood cancers, chronic illnesses and impairments such as deafness and blindness. To use the arts to create empathy in order to raise awareness and funding for Usher Syndrome to ultimately find a cure.
Also known as...
Arts for Ush; Kidz B Kidz
Total revenues
$499,989
2023
Total expenses
$448,421
2023
Total assets
$681,044
2023
Num. employees
0
2023

Program areas at Usher Syndrome Society

To use the arts to create empathy in order to raise awareness and funding for Usher Syndrome to ultimately find a cure.

Grants made by Usher Syndrome Society

GranteeGrant descriptionAmount
Coalition For Usher Syndrome ResearchResearch Usher Syndromeusher Syndrome Research$20,000

Who funds Usher Syndrome Society

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
WSDC FoundationUnrestricted$25,000
Coit Family FoundationDonation for Charitable Purposes$12,000
American Endowment FoundationUnclassifiable$10,000
...and 2 more grants received

Personnel at Usher Syndrome Society

NameTitleCompensation
Nancy CordermanPresident , Director$0

Financials for Usher Syndrome Society

RevenuesFYE 12/2023
Total grants, contributions, etc.$489,403
Program services$0
Investment income and dividends$10,586
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$499,989

Form 990s for Usher Syndrome Society

Fiscal year endingDate received by IRSFormPDF link
2023-122024-02-13990View PDF
2022-122023-02-15990View PDF
2021-122022-02-21990View PDF
2020-122021-05-20990View PDF
2019-122020-08-25990View PDF
...and 11 more Form 990s
Data update history
January 3, 2025
Received grants
Identified 2 new grant, including a grant for $25,000 from WSDC Foundation
August 15, 2024
Posted financials
Added Form 990 for fiscal year 2023
January 1, 2024
Received grants
Identified 1 new grant, including a grant for $15,000 from Coit Family Foundation
October 22, 2023
Received grants
Identified 3 new grant, including a grant for $320,000 from The Prince Family Foundation
June 23, 2023
Posted financials
Added Form 990 for fiscal year 2021
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Provides grantsConducts researchPartially liquidatedTax deductible donationsNo full-time employeesAccepts online donations
General information
Address
1544 Central Ave
Needham, MA 02492
Metro area
Boston-Cambridge-Newton, MA-NH
County
Norfolk County, MA
Website URL
ushersyndromesociety.org/ 
Phone
(781) 444-5766
IRS details
EIN
26-1577154
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2008
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G40: Diseases of Specific Organs
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
California AB-488 details
AB 488 status
May Operate or Solicit for Charitable Purposes
Charity Registration status
Current
FTB status revoked
Not revoked
AG Registration Number
CT0280712
FTB Entity ID
5112638
AB 488 data last updated ("as-of") date
2025-01-15
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