Program areas at Utah Down Syndrome Foundation
Newborn outreach, education, support, printing and distribution of educational materials and resources for families in Utah.
Udsf montly e-newsletter "low Down" made available to families thoughout the state of Utah as well as on our website to educate, inform and support ttherapists, educators, hospitals, doctors, professionals, families and individuals about advances and information on Down Syndrome in the state of Utah.
Buddy walks to raise funds for the Foundation and to promote public awareness and education about Down Syndrome and inclusivity, within the larger community and a variety of smaller community activities including a statewide conference for parents, to provide education, activities and support to families.
Chapter activities
Who funds Utah Down Syndrome Foundation
Grants from foundations and other nonprofits
Personnel at Utah Down Syndrome Foundation
| Name | Title | Compensation | Date of data |
|---|
| Jodi Lutkin | Executive Director | $36,000 | 2023-10-13 |
| Judy Hall | Director / Chairman of the Boar / Chairman of / President | $0 | 2020-12-31 |
| Brian R Cheney | Director | $0 | 2020-12-31 |
| Jana Wangsgard | Secretary | $0 | 2014-12-31 |
Financials for Utah Down Syndrome Foundation
| Revenues | FYE 12/2023 | FYE 12/2022 | % Change |
|---|
| Total grants, contributions, etc. | $128,563 | $134,647 | -4.5% |
| Program services | $4,054 | $3,127 | 29.6% |
| Membership dues | $0 | $0 | - |
| Investment income and dividends | $378 | $1 | 37700% |
| Net gain from sale of non-inventory assets | $0 | $0 | - |
| Net income from gaming activities and fundraising events, combined | $-19,672 | $-9,635 | -104.2% |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $147 | $736 | -80% |
| Total revenues | $113,470 | $128,876 | -12% |
Organizations like Utah Down Syndrome Foundation
| Organization | Type | Location | Revenue |
|---|
| Down Syndrome Association of Atlanta | 501(c)(3) | Atlanta, GA | $237,613 |
| Down Syndrome Association of West Michigan | 501(c)(3) | Grand Rapids, MI | $347,599 |
| Massachusetts Sickle Cell Association | 501(c)(3) | Boston, MA | $402,449 |
| Spina Bifida Texas | 501(c)(3) | San Antonio, TX | $158,092 |
| Sharing Down Syndrome Arizona | 501(c)(3) | Gilbert, AZ | $195,195 |
| Kentucky Hemophilia Foundation | 501(c)(3) | Louisville, KY | $285,400 |
| North Alabama Sickle Cell Foundation | 501(c)(3) | Huntsville, AL | $210,606 |
| Sickle Cell Disease Association of Illinois | 501(c)(3) | Chicago, IL | $299,918 |
| Hemophilia of Iowa | 501(c)(3) | Des Moines, IA | $189,415 |
| DSNetwork | 501(c)(3) | Tempe, AZ | $263,264 |
Data update history
December 23, 2023
Received grants
Identified 1 new grant, including a grant for $1,000 from Barbasol Foundation November 26, 2023
Posted financials
Added Form 990EZ for fiscal year 2022
November 26, 2023
Updated personnel
Identified 2 new personnel
August 17, 2023
Posted financials
Added Form 990EZ for fiscal year 2021
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsHeadquarter / parent organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchFundraising eventsState / local levelReceives government fundingFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
- Address
- PO Box 675
- Salt Lake City, UT 84110
- Metro area
- Salt Lake City, UT
- County
- Salt Lake County, UT
- Website URL
- udsf.org/
- Phone
- (801) 503-5086
IRS details
- EIN
- 87-0420378
- Fiscal year end
- December
- Taxreturn type
- Form 990-EZ
- Year formed
- 1978
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G20: Birth Defects and Genetic Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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