Program areas at Utah Prader-Willi Syndrome Association
Assisted living for individuals and families - Special needs camp, dance, support for medical, legal and respite needs, personal computing devices, Christmas and Summer activities
Awareness events - Sponsored and participated in awareness and fundraising events to raise awareness of the syndrome and facilitate early diagnosis and interventions
Training and education - Host training conference for families, participate with PWSA (national association), produce training resources for families
Who funds Utah Prader-Willi Syndrome Association
Grants from foundations and other nonprofits
Personnel at Utah Prader-Willi Syndrome Association
| Name | Title | Compensation | Date of data |
|---|
| Lisa Thornton | President | $0 | 2024-10-19 |
| Ellie Saltern | Secretary | $0 | 2023-12-31 |
| Duff Gardner | Treasurer | $0 | 2023-12-31 |
| Jon Saltern | Vice President | $0 | 2023-12-31 |
Financials for Utah Prader-Willi Syndrome Association
| Revenues | FYE 12/2023 | FYE 12/2022 | % Change |
|---|
| Total grants, contributions, etc. | $266,413 | $313,225 | -14.9% |
| Program services | $0 | $0 | - |
| Investment income and dividends | $25,066 | $8,695 | 188.3% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $0 | $0 | - |
| Net income from fundraising events | $0 | $0 | - |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $0 | $0 | - |
| Total revenues | $291,479 | $321,920 | -9.5% |
Organizations like Utah Prader-Willi Syndrome Association
| Organization | Type | Location | Revenue |
|---|
| Down Syndrome Association of Miami | 501(c)(3) | Miami, FL | $109,265 |
| Down Syndrome Association of Northwest Indiana | 501(c)(3) | Schererville, IN | $149,609 |
| Massachusetts Sickle Cell Associationinc | 501(c)(3) | Boston, MA | $120,178 |
| DSNetwork | 501(c)(3) | Tempe, AZ | $263,264 |
| Shoot For The Cure | 501(c)(3) | Anchorage, AK | $85,646 |
| Hemophilia Foundation of Northern California | 501(c)(3) | Martinez, CA | $515,346 |
| Kentucky Hemophilia Foundation | 501(c)(3) | Louisville, KY | $285,400 |
| North Alabama Sickle Cell Foundation | 501(c)(3) | Huntsville, AL | $210,606 |
| Sickle Cell Association of South Louisiana | 501(c)(3) | Baton Rouge, LA | $328,701 |
| Sunrise Children's Services / Achieve Tampa Bay | 501(c)(3) | Miami, FL | $1,064,285 |
Data update history
December 29, 2023
Posted financials
Added Form 990 for fiscal year 2022
December 29, 2023
Updated personnel
Identified 2 new personnel
November 25, 2023
Posted financials
Added Form 990 for fiscal year 2021
June 27, 2023
Posted financials
Added Form 990EZ for fiscal year 2020
February 24, 2022
Posted financials
Added Form 990EZ for fiscal year 2019
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchPartially liquidatedFundraising eventsState / local levelReceives government fundingFundraising races, competitions, and tournamentsTax deductible donationsNo full-time employeesAccepts online donations
General information
- Address
- 2652 E Nottingham Way
- Salt Lake City, UT 84108
- Metro area
- Salt Lake City, UT
- County
- Salt Lake County, UT
- Website URL
- upwsa.org/Â
IRS details
- EIN
- 87-0468350
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 1988
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G20: Birth Defects and Genetic Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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