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EIN 16-1154397

Wilson Disease Association Intl

IRS 501(c) type
501(c)(3)
Num. employees
1
City
New York
State
New York
Year formed
1983
Most recent tax filings
2022-12-01
NTEE code, primary
G80: Specifically Named Diseases
Description
Wilson Disease Association Intl supports individuals with Wilson's Disease and aids in research for treatment. It maintains an informative website, provides medication assistance, and publishes and mails newsletters. The association also supports local patient meetings and hosts an annual conference for patients. Its programs include the support of research through the Wilson Disease patient registry.
Also known as...
Wilsons Disease Association International
Total revenues
$655,804
2022
Total expenses
$537,994
2022
Total assets
$460,855
2022
Num. employees
1
2022

Program areas at Wilson Disease Association Intl

Support of research through the Wilson Disease patient registry
Maintain informative website, provide medication assistance, publish/mail newsletters. Support local patient meetings. Annual conference for patients.

Who funds Wilson Disease Association Intl

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$16,780
Network for GoodUnrestricted$10,792
Schwab Charitable FundHealth$10,500
...and 5 more grants received

Personnel at Wilson Disease Association Intl

NameTitleCompensation
Mary L GraperVice President$0
Steve WalshFinance Director$0
Alice WilliamsCommunications Director$0
Edward Tabor, MDMedical Policy Director
Lana EscamillaPatient Advocacy Director$0
...and 5 more key personnel

Financials for Wilson Disease Association Intl

RevenuesFYE 12/2022
Total grants, contributions, etc.$651,037
Program services$0
Investment income and dividends$2,915
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$1,852
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$655,804

Form 990s for Wilson Disease Association Intl

Fiscal year endingDate received by IRSFormPDF link
2023-122024-11-15990View PDF
2022-122023-11-13990View PDF
2021-122022-11-15990View PDF
2020-122021-07-21990View PDF
2019-122021-03-31990View PDF
...and 10 more Form 990s

Organizations like Wilson Disease Association Intl

OrganizationLocationRevenue
The Chandler ProjectLittle Rock, AR$320,872
Relapsing Polychondritis FoundationNew York, NY$641,371
Dyslexia Center of AustinAustin, TX$252,836
Slc6a1 ConnectFrisco, TX$676,629
Claire's Place FoundationRedondo Beach, CA$186,757
Special SpiritSunland, CA$196,389
SlamT1DJericho, VT$346,407
Jack McGovern Coats Disease FoundationBurlingame, CA$209,995
Setebaid ServicesWinfield, PA$627,511
Theos Village The TBCK FoundationPittsburgh, PA$268,612
Data update history
November 24, 2024
Updated personnel
Identified 4 new personnel
October 20, 2024
Received grants
Identified 1 new grant, including a grant for $1,000 from The WKW Family Foundation
August 25, 2024
Received grants
Identified 3 new grant, including a grant for $9,360 from American Online Giving Foundation
December 31, 2023
Received grants
Identified 1 new grant, including a grant for $1,000 from The WKW Family Foundation
December 24, 2023
Posted financials
Added Form 990 for fiscal year 2022
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchPartially liquidatedTax deductible donationsAccepts online donations
General information
Address
1732 1st Ave 20043
New York, NY 10128
Metro area
New York-Newark-Jersey City, NY-NJ-PA
County
New York County, NY
Website URL
wilsondisease.org/ 
Phone
(414) 961-0533
IRS details
EIN
16-1154397
Fiscal year end
December
Taxreturn type
Form 990
Year formed
1983
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G80: Specifically Named Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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