EIN 16-1513923

WFH Usa

IRS 501(c) type
501(c)(3)
Num. employees
0
City
Year formed
1996
Most recent tax filings
2022-12-01
Description
WFH USA advances the global mission of the World Federation of Hemophilia by improving and sustaining care for people with inherited bleeding disorders in the United States. They do this by developing resources and supporting national member organizations, hemophilia treatment centers, and healthcare practitioners through their WFH Humanitarian Aid Program. Additionally, they work to enhance data collection and research activities globally through their WFH Research Program, filling a unique need within the community. WFH USA is located in Albany, NY.
Also known as...
World Federation of Hemophilia USA
Total revenues
$684,615,118
2022
Total expenses
$684,510,863
2022
Total assets
$1,856,452
2022
Num. employees
0
2022

Program areas at WFH Usa

WFH Humanitarian Aid program The WFH Humanitarian Aid Program improves the lack of access to care and treatment by providing much-needed support to national member organizations NMOs hemophilia treatment centres HTCs and healthcare practitioners HCPs in emerging countries. This support comes in the form of education training and donated factor and non-factor replacement therapy. The objective of the program is to make it possible for people with inherited bleeding disorders to reliably access safe and consistent treatment and care regardless of their type of bleeding disorder gender or location. WFH USA provides tens of thousands of people living with hemophilia access to care and allows the introduction of prophylaxis and elective surgeries in more than 60 countries around the world. The Program promotes identification and diagnosis incentivizes governments to invest in bleeding disorders care and demonstrates the positive impact of investment in treatment. In accordance with the Collaboration Agreement between WFH USA and the WFH WFH USA is exclusively responsible for all solicitations of donors and potential donors of in-kind contributions of clotting factor and other pharmaceutical products for use in the WFH Humanitarian Aid Program and all monetary donations to support the WFH Humanitarian Aid Program. In accordance with the Collaboration agreement between WFH USA and the WFH WFH USA periodically grants contributions received to support the WFH Humanitarian Aid programs to the WFH as needed to carry out the WFH's responsibilities with respect to the WFH Humanitarian Aid Program
WFH RESEARCH PROGRAM The WFH Research Program works to enhance data collection and research activities around the world to build the evidence base for the optimal management of inherited bleeding disorders. It fills a unique need within the global community and has great potential to add value to the existing evidence base. Part of the Research Program the World Bleeding Disorders Registry WBDR is a web-based data entry system that provides a platform for a network of hemophilia treatment centers HTCs around the world to collect uniform and standardized data and guide clinical practice. In accordance with the Collaboration agreement between WFH USA and the WFH WFH USA periodically grants contributions received to support the WFH Research Program to the WFH as needed to carry out the WFH's responsibilities with respect to the WFH Research Program.
WFH TRAINING AND EDUCATION PROGRAM The WFH Training and Education program provides the global bleeding disorders community with the information and tools required to improve access to diagnosis and ensure reliable access to safe treatment and care. Training and education may be delivered through healthcare development programs in-person and virtual workshops and educational events and the development and distribution of educational resources available in printed and electronic format. In accordance with the Collaboration agreement between WFH USA and the WFH WFH USA periodically grants contributions received to support the WFH Training and Education programs to the WFH as needed to carry out the WFH's responsibilities with respect to the WFH Training and Education Program.

Who funds WFH Usa

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Hemophilia of Georgia (HoG)For the Care and Treatment of People With Bleeding Disorders$580,000
The Hemophilia AlliancePromote Advocacy, Education and Research for Patients and Families With Bleeding Disorders.$260,000
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$45,100
...and 5 more grants received

Personnel at WFH Usa

NameTitleCompensation
Alain BaumannExecutive Director$0
Antonio Jose AlmeidaSenior Director , Operations
Irene BitharasDirector , Finance and Administration
Neha SuchakDirector , Communications and Marketing / Director , Marketing and Communications
Donna CoffinMSC Director , Research and Education
...and 5 more key personnel

Financials for WFH Usa

RevenuesFYE 12/2022
Total grants, contributions, etc.$684,598,697
Program services$-26,415
Investment income and dividends$42,836
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$684,615,118

Form 990s for WFH Usa

Fiscal year endingDate received by IRSFormPDF link
2022-122023-08-21990View PDF
2021-122022-10-06990View PDF
2020-122022-05-04990View PDF
2019-122022-02-09990View PDF
2018-122019-09-18990View PDF
...and 8 more Form 990s

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UpmcPittsburgh, PA$496,651,247
Data update history
May 18, 2024
Received grants
Identified 4 new grant, including a grant for $260,000 from The Hemophilia Alliance
December 24, 2023
Received grants
Identified 1 new grant, including a grant for $1,000 from The Horowitz Family Foundation
October 11, 2023
Posted financials
Added Form 990 for fiscal year 2022
August 9, 2023
Posted financials
Added Form 990 for fiscal year 2020
August 8, 2023
Posted financials
Added Form 990 for fiscal year 2021
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsHeadquarter / parent organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchOperates internationallyNational levelEndowed supportProvides scholarshipsTax deductible donationsNo full-time employeesAccepts online donations
General information
Address
PMB 142 911 Central Ave
Albany, NY 12206
Metro area
Albany-Schenectady-Troy, NY
County
Albany County, NY
Website URL
wfh.org/usa/ 
Phone
(877) 417-7944
IRS details
EIN
16-1513923
Fiscal year end
December
Taxreturn type
Form 990
Year formed
1996
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G20: Birth Defects and Genetic Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Central organization
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