| Grantee | Grant description | Grant year | Amount |
|---|---|---|---|
| Regents of the University of Colorado | Investigator Grant / Drug Repurposing | 2022-06 | $190,000 |
| University of Kansas Medical Center Research Institute | Investigator Grant | 2022-06 | $160,000 |
| Yale University | Investigator Grant / Fellowship Grant | 2022-06 | $140,000 |
| ...and 9 more grants made | |||
| Grantmaker | Grantmaker tax period | Description | Amount |
|---|---|---|---|
| The Klingbeil Family Foundation | 2022-12 | Polycystic Kidney Disease Research | $948,458 |
| American Online Giving Foundation | 2023-03 | General Support | $153,931 |
| Schwab Charitable Fund | 2023-06 | Health | $140,780 |
| ...and 109 more grants received totalling $2,274,660 | |||
| Name | Title | Compensation | Date of data |
|---|---|---|---|
| Andrew Betts | President and Chief Executive Officer | $276,610 | 2022-06-30 |
| Carmen Gleason | Chief Operating Officer | $90,167 | 2023-05-05 |
| Chad Iseman | Chief Advancment Officer / Chief Advancement Officer | $189,895 | 2022-06-30 |
| Christopher Rusconi | Chief Research Officer | $211,293 | 2022-06-30 |
| Shanna Eiklenborg | Senior Director - Education and Events | $109,155 | 2022-06-30 |
| ...and 25 more key personnel | |||
| Revenues | FYE 06/2022 |
|---|---|
| Total grants, contributions, etc. | $18,319,682 |
| Program services | $0 |
| Investment income and dividends | $456,850 |
| Tax-exempt bond proceeds | $0 |
| Royalty revenue | $0 |
| Net rental income | $0 |
| Net gain from sale of non-inventory assets | $-170,907 |
| Net income from fundraising events | $-133,230 |
| Net income from gaming activities | $0 |
| Net income from sales of inventory | $0 |
| Miscellaneous revenues | $553 |
| Total revenues | $18,472,948 |
| Fiscal year ending | Date received by IRS | Form | PDF link |
|---|---|---|---|
| 2022-06 | 2023-05-05 | 990 | View PDF |
| 2021-06 | 2022-02-07 | 990 | View PDF |
| 2020-06 | 2021-04-06 | 990 | View PDF |
| 2019-06 | 2021-04-06 | 990 | View PDF |
| 2019-06 | 2020-11-12 | 990 | View PDF |
| ...and 10 more Form 990s | |||
| Organization | Type | Location | Revenue |
|---|---|---|---|
| Lupus Research Alliance (ALR) | 501(c)(3) | New York, NY | $22,699,491 |
| American Foundation for Suicide Prevention | 501(c)(3) | New York, NY | $48,034,966 |
| Christopher and Dana Reeve Foundation | 501(c)(3) | Short Hills, NJ | $16,163,010 |
| Aids Research Foundation or AMFAR | 501(c)(3) | New York, NY | $31,444,145 |
| TSC Alliance | 501(c)(3) | Silver Spring, MD | $10,016,383 |
| Lymphoma Research Foundation (LRF) | 501(c)(3) | New York, NY | $14,709,927 |
| ALS Association (ALS) | 501(c)(3) | Arlington, VA | $55,567,608 |
| Epilepsy Foundation | 501(c)(3) | Bowie, MD | $21,897,167 |
| Cure Sma (CSMA) | 501(c)(3) | Elk Grove Village, IL | $13,668,775 |
| Children's Tumor Foundation | 501(c)(3) | New York, NY | $16,990,325 |
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