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District of Columbia genetic disorder organizations

There are 14genetic disorder and birth defect organizations in District of Columbia. Combined, these Washingtoniangenetic disorder organizationsemploy 166 people, earn more than $37 million in revenue each year, and have assets of $36 million.
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Genetic disorder organizations by major District of Columbia cities

Metro areaNonprofitsRevenues
Washington DC
14
$37,090,775
Showing 1 of 1metros

Job trends for District of Columbia genetic disorder organizations

Employees per organizationNumber of organizations
0
3
1-10
3
11-25
1
26-100
4
101 to 1,000
0
1,000+
0
Key takeaways for employment stats:

Sizes of genetic disorder organizations in District of Columbia

Revenues per organizationNumber of organizations
< $250k
1
$250k to $1M
4
$1M to $5M
3
$5M to $25M
3
$25M to $100M
0
$100M+
0
Key takeaways for revenue stats:

Directory of genetic disorder organizations in District of Columbia

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1-14 of 14

National Down Syndrome Society (NDSS)

The mission of the National Down Syndrome Society (NDSS) is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome. They have over 350 affiliate groups across the country.
Revenue
$3.4m
Assets
$13.5m
Employees
29
EIN
13-2992567
IRS type
501(c)(3)

Parent Project Muscular Dystrophy (PPMD)

Parent Project Muscular Dystrophy's mission is to end Duchenne. We accelerate research, raise our voices in Washington, demand optimal care for all young men, and educate the global community.
Revenue
$13.9m
Assets
$10.4m
Employees
26
EIN
31-1405490
IRS type
501(c)(3)

Hemophilia Federation of America (HFA)

Hemophilia Federation of America is organization that assists and advocates for the bleeding disorders community. To remove barriers to choice of treatment and to improve the care and quality of life for all people with bleeding disorders.
Revenue
$5.6m
Assets
$6.7m
Employees
40
EIN
72-1282316
IRS type
501(c)(3)

Global Genes

To Eliminate the Challenges of Rare Disease. We build awareness, educate the global community, and provide critical connections and resources that equip advocates to become activists for their disease.
Revenue
$8.5m
Assets
$2.1m
Employees
41
EIN
26-3331487
IRS type
501(c)(3)

Lupus America Communities

Lupus America Communities enhances lupus awareness and quality of life through education, support, advocacy, and funding programs for the Lupus Foundation of America.
Revenue
$2.4m
Assets
$507.5k
Employees
0
EIN
90-0870868
IRS type
501(c)(3)

Association for the Severely Handicapped (TASH)

To advance the human rights of people with the most significant disabilities - those most at risk for exclusion, segregation, and institutionalization - through inquiry, education, and activism.
Revenue
$1.1m
Assets
$338.9k
Employees
7
EIN
51-0160220
IRS type
501(c)(3)

National Alliance of Sickle Cell Centers

National Alliance of Sickle Cell Centers supports delivering high-quality comprehensive care by setting standards, promoting adoption, and identifying resources.
Revenue
$787.9k
Assets
$287.4k
Employees
0
EIN
85-4331176
IRS type
501(c)(3)

Syngap1 Foundation

Syngap1 (mrd5) natural history study registry: to conduct a prospectively- planned and efficient natural study history that will result in the most comprehensive understanding of the disease and its course and pace over time.
Revenue
$69.9k
Assets
$4,757
Employees
1
EIN
47-2459997
IRS type
501(c)(3)

Joey's Foundation / Joseph Robert Shaw Foundation Inc

The Joseph Robert Shaw Foundation supports brain injury research, sponsors a physical activity program for those with CP and creates multisensory adaptive books.
Revenue
$261.5k
Assets
$1.3m
Employees
0
EIN
82-0765105
IRS type
501(c)(3)

We Care DMV Day Services (UCP)

United Cerebral Palsy of Washington DC & Northern VA. (UCP) is that offers an array of day supports and services for people with intellectual disabilities, physical disabilities and complex medical profiles, in the Washington metropolitan area.
Revenue
$629.2k
Assets
$246.6k
Employees
17
EIN
53-0245286
IRS type
501(c)(3)

International SCN8A Alliance

We work collaboratively to accelerate the pace of science on Scn8a and related disorders in order to bring hope and improved outcomes for all those living with rare Epilepsies and their families.
Revenue
$586.2k
Assets
$689.2k
Employees
5
EIN
47-1822559
IRS type
501(c)(3)

KNCV Tuberculosis Foundation United States

KNCV Tuberculosis Foundation United States is committed to eliminating tuberculosis worldwide through diagnosis, treatment, and global program support.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
83-1797620
IRS type
501(c)(3)

Olivia S Peters Pediatric Therapy Foundation

Olivia S Peters Pediatric Therapy Foundation is a genetic disorder or birth defect organization in Washington, DC that was founded in 2024.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
87-4601857
IRS type
501(c)(3)

Sickle Cell Disease Association of Greater Washington

Sickle Cell Disease Association of Greater Washington is a genetic disorder or birth defect organization in Washington, DC that was founded in 2022.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
52-1796999
IRS type
501(c)(3)
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Methodology: Cause IQ mines all tax-exempt organizations that file a Form 990, Form 990-EZ, or Form 990-PF with the IRS. We collect and aggregate this information from OCR'd paper taxreturns, XML e-file taxreturns, IRS-provided extract, the Business Master File, and Cause IQ secret sauce for data cleaning, categorization, classification, analytics, etc.
This category corresponds to the "G20: Birth Defects and Genetic Diseases" National Taxonomy of Exempt Entities (NTEE) code. Cause IQ determines NTEEs for organizations by its own internally-developed secret-sauce algorithms.
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