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Washington DC genetic disorder organizations

There are 42genetic disorder and birth defect organizations in the greater Washington DCmetro area, including the cities of Washington DC, Bethesda, Frederick, Gaithersburg, Rockville, Alexandria, Arlington, and Reston within the states of Maryland, District of Columbia, and Virginia. Combined, these Washington DC metro genetic disorder organizationsemploy 1,258 people, earn more than $285 million in revenue each year, and have assets of $5 billion.
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Job trends for Washington DC genetic disorder organizations

Employees per organizationNumber of organizations
0
6
1-10
6
11-25
4
26-100
4
101 to 1,000
2
1,000+
0
Key takeaways for employment stats:

Sizes of genetic disorder organizations in Washington DC

Revenues per organizationNumber of organizations
< $250k
12
$250k to $1M
8
$1M to $5M
6
$5M to $25M
2
$25M to $100M
0
$100M+
1
Key takeaways for revenue stats:

Directory of genetic disorder organizations in Washington DC

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1-20 of 42

National Down Syndrome Society (NDSS)

The mission of the National Down Syndrome Society (NDSS) is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome. They have over 350 affiliate groups across the country.
Revenue
$3.7m
Assets
$13.1m
Employees
29
EIN
13-2992567
IRS type
501(c)(3)

Cystic Fibrosis Foundation

Cystic Fibrosis Foundation: Mission to cure CF. World leader in search for a cure. Supports patients and families managing challenges of CF.
Revenue
$248.6m
Assets
$4.7b
Employees
890
EIN
13-1930701
IRS type
501(c)(3)

My Own Place

My Own Place improves the quality of life of all persons with intellectual and developmental disabilities by maximizing one's independence by advocating and providing a standard of living that is driven by choices, preferences and desires.
Revenue
$10.4m
Assets
$14.2m
Employees
142
EIN
20-1560679
IRS type
501(c)(3)

Hemophilia Federation of America (HFA)

Hemophilia Federation of America is organization that assists and advocates for the bleeding disorders community. To remove barriers to choice of treatment and to improve the care and quality of life for all people with bleeding disorders.
Revenue
$5.6m
Assets
$6.7m
Employees
40
EIN
72-1282316
IRS type
501(c)(3)

Spina Bifida Association of America

Spina Bifida Association supports individuals with the condition through education, advocacy, and research to build a better future.
Revenue
$2.2m
Assets
$1.4m
Employees
16
EIN
58-1342181
IRS type
501(c)(3)

Osteogenesis Imperfecta Foundation

Our mission is to improve the quality of life for people with Osteogenesis Imperfecta through research to find treatments and a cure, education, awareness and mutual support.
Revenue
$2.1m
Assets
$2.1m
Employees
11
EIN
23-7076021
IRS type
501(c)(3)

United Cerebral Palsy

UCP and its 58 affiliates provide resources and support for people with disabilities and their families, including housing, therapies, and assistive technologies.
Revenue
$3.8m
Assets
$9.9m
Employees
5
EIN
20-3568840
IRS type
501(c)(3)

Genetic Alliance

Genetic Alliance is a nonprofit organization advocating for health benefits in the field of genomic research. This organization is a network of over 1,000 disease advocacy organizations, universities, government organizations and private companies.
Revenue
$3.2m
Assets
$704.7k
Employees
27
EIN
52-1571905
IRS type
501(c)(3)

Association for the Severely Handicapped (TASH)

To advance the human rights of people with the most significant disabilities - those most at risk for exclusion, segregation, and institutionalization - through inquiry, education, and activism.
Revenue
$1.1m
Assets
$365.9k
Employees
11
EIN
51-0160220
IRS type
501(c)(3)

Foundation to Eradicate Duchenne

Dedicated to funding research for treating and curing Duchenne Muscular Dystrophy, through aggressive research grants awarded annually.
Revenue
$777.1k
Assets
$837.5k
Employees
0
EIN
71-0874241
IRS type
501(c)(3)

Joshuas S Hope

Joshuas S Hope provides assistance and resources to Muscular Dystrophy patients in Spotsylvania, VA including specialized equipment and transportation to appointments/camps.
Revenue
$22.3k
Assets
$19.9k
Employees
N/A
EIN
45-0948897
IRS type
501(c)(3)

New World Horizons

New World Horizons provides events for children with Down syndrome and autism and their families. However, due to Covid restrictions, NWH did not hold any events in 2021.
Revenue
$200
Assets
$2,495
Employees
N/A
EIN
82-5414119
IRS type
501(c)(3)

Dbicolanos and Friends Foundation

Dbicolanos and Friends Foundation is a genetic disorder or birth defect organization in Washington, DC that was founded in 1998.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
52-2004852
IRS type
501(c)(3)

Cystic Fibrosis Foundation (CFF)

CFF is a genetic disorder or birth defect organization in Bethesda, MD whose mission is: The Cystic Fibrosis Foundation is committed to finding new therapies and ultimately a cure for CF.
Revenue
$0
Assets
$0
Employees
61
EIN
91-2059167
IRS type
501(c)(3)

The FACE OF SICKLE CELL

The FACE OF SICKLE CELL is a genetic disorder or birth defect organization in Takoma Park, MD that was founded in 2017.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
81-2606050
IRS type
501(c)(3)

Chapman Pharmaceutical Health Foundation

The Chapman Pharmaceutical Health Foundation educates individuals on health issues related to poverty, with a particular focus on birth defects and genetic diseases.
Revenue
$0
Assets
$47.6k
Employees
N/A
EIN
30-0187160
IRS type
501(c)(3)

Louies Huwe

Louies Huwe is a genetic disorder or birth defect organization in Stafford, VA that was founded in 2021.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
86-1930096
IRS type
501(c)(3)

Hemophilia Association of the Capital Area

Supports advocacy, education, and awareness for those with bleeding disorders; holds classes, publishes newsletters, and provides limited financial support.
Revenue
$334.9k
Assets
$976.0k
Employees
3
EIN
54-1702561
IRS type
501(c)(3)

Faces of Our Children

Faces of Our Children raises sickle cell disease awareness through information, education programs, and materials for people.
Revenue
$78.6k
Assets
$169.3k
Employees
0
EIN
52-2343090
IRS type
501(c)(3)

Campaign to Prevent Alzheimers Disease

PAD2020 is a national campaign to increase research and knowledge to prevent Alzheimer's and other related neurodegenerative diseases.
Revenue
$631.4k
Assets
$115.8k
Employees
0
EIN
27-0425749
IRS type
501(c)(3)
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Methodology: Cause IQ mines all tax-exempt organizations that file a Form 990, Form 990-EZ, or Form 990-PF with the IRS. We collect and aggregate this information from OCR'd paper taxreturns, XML e-file taxreturns, IRS-provided extract, the Business Master File, and Cause IQ secret sauce for data cleaning, categorization, classification, analytics, etc.
This category corresponds to the "G20: Birth Defects and Genetic Diseases" National Taxonomy of Exempt Entities (NTEE) code. Cause IQ determines NTEEs for organizations by its own internally-developed secret-sauce algorithms.
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