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Washington DC genetic disorder organizations

There are 55genetic disorder and birth defect organizations in the greater Washington DCmetro area, including the cities of Washington DC, Bethesda, Frederick, Gaithersburg, Rockville, Alexandria, Arlington, and Reston within the states of Maryland, District of Columbia, and Virginia. Combined, these Washington DC metro genetic disorder organizationsemploy 1,305 people, earn more than $314 million in revenue each year, and have assets of $5 billion.
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Job trends for Washington DC genetic disorder organizations

Employees per organizationNumber of organizations
0
11
1-10
10
11-25
4
26-100
5
101 to 1,000
2
1,000+
0
Key takeaways for employment stats:

Sizes of genetic disorder organizations in Washington DC

Revenues per organizationNumber of organizations
< $250k
15
$250k to $1M
12
$1M to $5M
7
$5M to $25M
4
$25M to $100M
0
$100M+
1
Key takeaways for revenue stats:

Directory of genetic disorder organizations in Washington DC

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1-20 of 55

National Down Syndrome Society (NDSS)

The mission of the National Down Syndrome Society (NDSS) is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome. They have over 350 affiliate groups across the country.
Revenue
$3.4m
Assets
$13.5m
Employees
29
EIN
13-2992567
IRS type
501(c)(3)

Cystic Fibrosis Foundation

The Cystic Fibrosis Foundation drives research, funds innovative therapies, advocates for patients, and supports the CF community to improve lives affected by cystic fibrosis.
Revenue
$248.6m
Assets
$4.7b
Employees
890
EIN
13-1930701
IRS type
501(c)(3)

My Own Place

My Own Place improves the quality of life of all persons with intellectual and developmental disabilities by maximizing one's independence by advocating and providing a standard of living that is driven by choices, preferences and desires.
Revenue
$14.1m
Assets
$18.8m
Employees
126
EIN
20-1560679
IRS type
501(c)(3)

Parent Project Muscular Dystrophy (PPMD)

Parent Project Muscular Dystrophy's mission is to end Duchenne. We accelerate research, raise our voices in Washington, demand optimal care for all young men, and educate the global community.
Revenue
$13.9m
Assets
$10.4m
Employees
26
EIN
31-1405490
IRS type
501(c)(3)

Global Genes

To Eliminate the Challenges of Rare Disease. We build awareness, educate the global community, and provide critical connections and resources that equip advocates to become activists for their disease.
Revenue
$8.5m
Assets
$2.1m
Employees
41
EIN
26-3331487
IRS type
501(c)(3)

Hemophilia Federation of America (HFA)

Hemophilia Federation of America is organization that assists and advocates for the bleeding disorders community. To remove barriers to choice of treatment and to improve the care and quality of life for all people with bleeding disorders.
Revenue
$5.6m
Assets
$6.7m
Employees
40
EIN
72-1282316
IRS type
501(c)(3)

Spina Bifida Association of America

Spina Bifida Association supports individuals with the condition through education, advocacy, and research to build a better future.
Revenue
$2.2m
Assets
$1.4m
Employees
16
EIN
58-1342181
IRS type
501(c)(3)

Osteogenesis Imperfecta Foundation

Our mission is to improve the quality of life for people with Osteogenesis Imperfecta through research to find treatments and a cure, education, awareness and mutual support.
Revenue
$2.2m
Assets
$2.3m
Employees
13
EIN
23-7076021
IRS type
501(c)(3)

Genetic Alliance

Genetic Alliance is a nonprofit organization advocating for health benefits in the field of genomic research. This organization is a network of over 1,000 disease advocacy organizations, universities, government organizations and private companies.
Revenue
$2.5m
Assets
$858.7k
Employees
13
EIN
52-1571905
IRS type
501(c)(3)

United Cerebral Palsy

UCP and its 58 affiliates provide resources and support for people with disabilities and their families, including housing, therapies, and assistive technologies.
Revenue
$2.2m
Assets
$10.9m
Employees
4
EIN
20-3568840
IRS type
501(c)(3)

Lupus America Communities

Lupus America Communities enhances lupus awareness and quality of life through education, support, advocacy, and funding programs for the Lupus Foundation of America.
Revenue
$2.4m
Assets
$507.5k
Employees
0
EIN
90-0870868
IRS type
501(c)(3)

Association for the Severely Handicapped (TASH)

To advance the human rights of people with the most significant disabilities - those most at risk for exclusion, segregation, and institutionalization - through inquiry, education, and activism.
Revenue
$1.1m
Assets
$338.9k
Employees
7
EIN
51-0160220
IRS type
501(c)(3)

National Alliance of Sickle Cell Centers

National Alliance of Sickle Cell Centers supports delivering high-quality comprehensive care by setting standards, promoting adoption, and identifying resources.
Revenue
$787.9k
Assets
$287.4k
Employees
0
EIN
85-4331176
IRS type
501(c)(3)

Pku Hope Foundation

PKU Hope Foundation: improving PKU lives by fostering community, supporting research, and easing the burden of managing diet.
Revenue
$817.8k
Assets
$807.3k
Employees
0
EIN
93-2255729
IRS type
501(c)(3)

Foundation to Eradicate Duchenne

Dedicated to funding research for treating and curing Duchenne Muscular Dystrophy, through aggressive research grants awarded annually.
Revenue
$777.1k
Assets
$837.5k
Employees
0
EIN
71-0874241
IRS type
501(c)(3)

Beyondpartners

Beyondpartners is a genetic disorder or birth defect organization in Stafford, VA that was founded in 2024.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
99-4110394
IRS type
501(c)(3)

Pxe International

Pxe International supports individuals affected by pseudoxanthoma elasticum through research, education, and a robust network for information and clinical trial recruitment.
Revenue
$615.1k
Assets
$323.3k
Employees
3
EIN
04-3294138
IRS type
501(c)(3)

New World Horizons

New World Horizons provides events for children with Down syndrome and autism and their families. However, due to Covid restrictions, NWH did not hold any events in 2021.
Revenue
$200
Assets
$2,495
Employees
N/A
EIN
82-5414119
IRS type
501(c)(3)

VOICES Of FRIEDREICHS ATAXIA

VOICES Of FRIEDREICHS ATAXIA raises awareness about Friedreichs Ataxia through its programs such as maintaining a website, running a YouTube channel, creating Facebook pages and other social media.
Revenue
$421
Assets
$6
Employees
N/A
EIN
87-1112330
IRS type
501(c)(3)

Joshuas S Hope

Joshuas S Hope provides assistance and resources to Muscular Dystrophy patients in Spotsylvania, VA including specialized equipment and transportation to appointments/camps.
Revenue
$20.2k
Assets
$22.1k
Employees
N/A
EIN
45-0948897
IRS type
501(c)(3)
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Methodology: Cause IQ mines all tax-exempt organizations that file a Form 990, Form 990-EZ, or Form 990-PF with the IRS. We collect and aggregate this information from OCR'd paper taxreturns, XML e-file taxreturns, IRS-provided extract, the Business Master File, and Cause IQ secret sauce for data cleaning, categorization, classification, analytics, etc.
This category corresponds to the "G20: Birth Defects and Genetic Diseases" National Taxonomy of Exempt Entities (NTEE) code. Cause IQ determines NTEEs for organizations by its own internally-developed secret-sauce algorithms.
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