Program areas at American Cleft Palate - Craniofacial Association
Professional education related to clinical care and research a) to educate concerned professionals about new clinical and research information b) to provide an opportunity for the involved professionals to update their knowledge and skills of their own and related disciplines c) to create an environment that encourages interaction among multidisciplinary participants d) to publish a journal to communicate relevant information to professionals.
Outreach and alliances a) to educate the public about the importance of team care as it relates to individuals affected by facial birth defects b) to partner with allied organizations to enhance capabilities to achieve strategic objectives related to patient care.
Membership and team services a) to create and maintain a diverse network of professionals involved with clinical team care and research relating to individuals affected by Cleft lip, Cleft Palate, and other Craniofacial abnormalities b)to partner with family services to improve the quality of team care and advocate for improved patient care.
Who funds American Cleft Palate - Craniofacial Association
Grants from foundations and other nonprofits
Personnel at American Cleft Palate - Craniofacial Association
Name | Title | Compensation | Date of data |
---|
Adam M. Levy | Executive Director | $179,950 | 2024-11-23 |
Jamie Perry | | $29,365 | 2023-12-31 |
James J. Cray | Communications Officer | $0 | 2024-11-23 |
John F. Caccamese | Immediate Past President | $0 | 2024-11-23 |
Scott A. Dailey | Treasurer | $0 | 2024-11-23 |
...and 18 more key personnel |
Financials for American Cleft Palate - Craniofacial Association
Revenues | FYE 12/2023 | FYE 12/2022 | % Change |
---|
Total grants, contributions, etc. | $644,671 | $900,483 | -28.4% |
Program services | $634,071 | $693,143 | -8.5% |
Investment income and dividends | $134,120 | $79,307 | 69.1% |
Tax-exempt bond proceeds | $0 | $0 | - |
Royalty revenue | $0 | $0 | - |
Net rental income | $0 | $0 | - |
Net gain from sale of non-inventory assets | $20,982 | $361,446 | -94.2% |
Net income from fundraising events | $0 | $0 | - |
Net income from gaming activities | $0 | $0 | - |
Net income from sales of inventory | $22,029 | $21,900 | 0.6% |
Miscellaneous revenues | $21,077 | $15,357 | 37.2% |
Total revenues | $1,476,950 | $2,071,636 | -28.7% |
Organizations like American Cleft Palate - Craniofacial Association
Organization | Type | Location | Revenue |
---|
Down Syndrome Innovations | 501(c)(3) | Shawnee Mission, KS | $1,538,198 |
National Down Syndrome Society (NDSS) | 501(c)(3) | Washington, DC | $3,354,289 |
Down Syndrome Association of Greater Cincinnati | 501(c)(3) | Cincinnati, OH | $1,883,770 |
Foundation for Sarcoidosis Research (FSR) | 501(c)(3) | Chicago, IL | $2,574,104 |
Pacific Northwest Bleeding Disorders | 501(c)(3) | Corvallis, OR | $603,450 |
Hemophilia Foundation of Michigan | 501(c)(3) | Ypsilanti, MI | $3,941,132 |
Lone Star Bleeding Disorders Foundation | 501(c)(3) | Houston, TX | $663,733 |
National Foundation for Ectodermal Dysplasias | 501(c)(3) | Fairview Heights, IL | $1,161,405 |
Gateway Hemophilia Association | 501(c)(3) | Saint Louis, MO | $374,624 |
United Cerebral Palsy | 501(c)(3) | Vienna, VA | $2,223,432 |
Data update history
November 23, 2024
Updated personnel
Identified 3 new personnel
May 25, 2024
Posted financials
Added Form 990 for fiscal year 2023
May 21, 2024
Updated personnel
Identified 3 new personnel
January 2, 2024
Received grants
Identified 1 new grant, including a grant for $2,003 from AmazonSmile Foundation June 22, 2023
Posted financials
Added Form 990 for fiscal year 2021
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
MembershipsConducts researchEndowed supportCommunity engagement / volunteeringProvides scholarshipsAuction fundraisersTax deductible donationsAccepts online donations
General information
- Address
- 1504 E Franklin St Ste 102
- Chapel Hill, NC 27514
- Metro area
- Durham-Chapel Hill, NC
- County
- Orange County, NC
- Website URL
- acpacares.org/Â
- Phone
- (919) 933-9044
IRS details
- EIN
- 43-0793521
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 1974
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G20: Birth Defects and Genetic Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
California AB-488 details
- AB 488 status
- May Operate or Solicit for Charitable Purposes
- Charity Registration status
- Current
- FTB status revoked
- Not revoked
- AG Registration Number
- CT0266262
- FTB Entity ID
- None yet
- AB 488 data last updated ("as-of") date
- 2024-12-31
Free account sign-up
Want updates when American Cleft Palate - Craniofacial Association has new information, or want to find more organizations like American Cleft Palate - Craniofacial Association?
Create free Cause IQ account