Program areas at CPF
The Foundation provides financial support to rigorously reviewed, scientifically important research relevant to Cerebral Palsy and other developmental disabilities. The Foundation also provides medical expertise as requested by other organizations and serves as a resource for the international public, clinicians and policy-makers about best health care practices, prevention and curative strategies for Cerebral Palsy. The Foundation is also focusing its attention on research directed at issues of early diagnosis, mechanisms of nervous system injury and repair, regenerative treatments, neurological rehabilitation, orthopedic rehabilitation and engineering solutions as well as research to prevent the secondary neuromuscular, musculoskeletal and cardiovascular complications seen in adults with Cerebral Palsy. There are approximately 1 million children and adults in the usa with Cerebral Palsy and related developmental disabilities, more clinical and basic biomedical research is urgently needed for improving neurological functions, preventing medical complications, and optimizing quality of life in these individuals from infancy through adulthood.
Who funds Cerebral Palsy Foundation (CPF)
Grants from foundations and other nonprofits
Personnel at CPF
| Name | Title | Compensation | Date of data |
|---|
| Rebecca Lam | Vice President of Programs and Operations | $112,449 | 2023-09-30 |
| Deborah Fink | Vice President of Education and Inclusion | $107,354 | 2023-09-30 |
| Rachel Jordan | Executive Director | $210,250 | 2024-07-22 |
| Ila Eckhoff | Chairman | $0 | 2023-09-30 |
| Patrick Downes | Treasurer | $0 | 2023-09-30 |
| ...and 7 more key personnel |
Financials for CPF
| Revenues | FYE 09/2023 | FYE 09/2022 | % Change |
|---|
| Total grants, contributions, etc. | $3,811,008 | $1,916,963 | 98.8% |
| Program services | $208,807 | $230,538 | -9.4% |
| Investment income and dividends | $30,134 | $5,085 | 492.6% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $27,483 | $0 | 999% |
| Net income from fundraising events | $-56,159 | $-832 | -6649.9% |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $0 | $0 | - |
| Total revenues | $4,021,273 | $2,151,754 | 86.9% |
Organizations like CPF
| Organization | Type | Location | Revenue |
|---|
| Huntington's Disease Society of America (HDSA) | 501(c)(3) | New York, NY | $10,709,965 |
| Children's Tumor Foundation | 501(c)(3) | New York, NY | $16,990,325 |
| International FOP Association | 501(c)(3) | North Kansas City, MO | $3,050,181 |
| National Down Syndrome Society (NDSS) | 501(c)(3) | Washington, DC | $3,354,289 |
| Foundation for Prader Willi Research (FPWR) | 501(c)(3) | Covina, CA | $5,083,937 |
| Charcot-Marie-Tooth Association (CMTA) | 501(c)(3) | Glenolden, PA | $5,761,508 |
| Emily's Entourage | 501(c)(3) | Ardmore, PA | $2,799,957 |
| The Cure Starts Now | 501(c)(3) | Cincinnati, OH | $5,080,693 |
| Parent Project Muscular Dystrophy (PPMD) | 501(c)(3) | Washington, DC | $13,881,085 |
| Williams Syndrome Association | 501(c)(3) | Newark, NJ | $2,421,502 |
Data update history
August 31, 2024
Posted financials
Added Form 990 for fiscal year 2023
August 30, 2024
Updated personnel
Identified 2 new personnel
December 25, 2023
Received grants
Identified 2 new grant, including a grant for $225,000 from Dechomai Foundation Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Provides grantsConducts researchFundraising eventsOperates internationallyNational levelEndowed supportGala fundraisersTax deductible donationsAccepts online donations
General information
- Address
- 3 Columbus Cir Floor Suite 15th
- New York, NY 10019
- Metro area
- New York-Newark-Jersey City, NY-NJ-PA
- County
- New York County, NY
- Website URL
- yourcpf.org/Â
- Phone
- (212) 520-1686
- Facebook page
- cerebralpalsyfoundationÂ
- Twitter profile
- @yourcpfÂ
IRS details
- EIN
- 13-6093337
- Fiscal year end
- September
- Taxreturn type
- Form 990
- Year formed
- 1955
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G20: Birth Defects and Genetic Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
California AB-488 details
- AB 488 status
- May Operate or Solicit for Charitable Purposes
- Charity Registration status
- Current
- FTB status revoked
- Not revoked
- AG Registration Number
- 132860
- FTB Entity ID
- None yet
- AB 488 data last updated ("as-of") date
- 2024-10-16
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