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EIN 43-1642150

Charge Syndrome Foundation

IRS 501(c) type
501(c)(3)
Num. employees
5
City
Buffalo Grove
State
Illinois
Year formed
1993
Most recent tax filings
2023-12-01
NTEE code, primary
G80: Specifically Named Diseases
Description
The Charge Syndrome Foundation supports individuals with Charge Syndrome through research, outreach, education, and conferences. They lead and partner to improve the lives of people with Charge Syndrome locally, nationally, and internationally through outreach, education, and research. The foundation provides information about Charge Syndrome through publication, supports families with an individual with Charge Syndrome, provides biennial conferences, and supports research related to Charge Syndrome.
Total revenues
$1,127,763
2023
Total expenses
$922,660
2023
Total assets
$1,592,023
2023
Num. employees
5
2023

Program areas at Charge Syndrome Foundation

Provide information about Charge Syndrome through publication; provide support to families with an individual with Charge; provide biennial conferences; support research related to Charge Syndrome.

Who funds Charge Syndrome Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
American Online Giving FoundationGeneral Support$31,369
Honda USA Foundation (AHF)Charge Syndrome Is A Rare Genetic Condition Most Evident Through Unique Facial Features and Impacts Many Parts of A Child's Body Including Their Eyes, Nerves, Heart, Nasal Passages, Genitals and Ears. the Charge Syndrome Foundation Established the Ethan Wolfe Recreational Assistance Program To Enable Individuals With Charge the Opportunity To Experience the Joys of Mobility By Participating in Fun, Enriching Activities and Accessing Much Needed Resources and Equipment. This Includes Adaptive Bikes, Summer Camps, and Therapeutic and Specialized Classes. the Foundation Also Focuses on Growing Its Outreach and Support Programs; Promoting Awareness By Building Networks and Partnerships; and By Staying Apprised of Leading-Edge Research.$25,000
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$15,004
...and 8 more grants received

Personnel at Charge Syndrome Foundation

NameTitleCompensation
Lisa CunninghamExecutive Director$80,308
Joanne LentSecretary$0
David WolfePresident$0
Neal StangerBoard Member$0
Amrit MehtaTreasurer$0
...and 1 more key personnel

Financials for Charge Syndrome Foundation

RevenuesFYE 12/2023
Total grants, contributions, etc.$415,746
Program services$484,545
Investment income and dividends$36,442
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$1,091
Net income from fundraising events$189,646
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$293
Total revenues$1,127,763

Form 990s for Charge Syndrome Foundation

Fiscal year endingDate received by IRSFormPDF link
2023-122024-08-23990View PDF
2022-122023-08-08990View PDF
2021-122022-06-27990View PDF
2020-122021-06-23990View PDF
2019-122021-02-19990View PDF
...and 9 more Form 990s
Data update history
September 21, 2024
Received grants
Identified 2 new grant, including a grant for $25,000 from Honda USA Foundation (AHF)
May 18, 2024
Received grants
Identified 2 new grant, including a grant for $31,369 from American Online Giving Foundation
April 10, 2024
Updated personnel
Identified 2 new personnel
January 3, 2024
Received grants
Identified 2 new grant, including a grant for $11,000 from The Community Foundation of Greater Birmingham
October 23, 2023
Received grants
Identified 1 new grant, including a grant for $15,450 from The Blackbaud Giving Fund
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchFundraising eventsPeer-to-peer fundraisingNational levelCommunity engagement / volunteeringProvides scholarshipsFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
Address
318 Half Day Rd Ste 305
Buffalo Grove, IL 60089
Metro area
Chicago-Naperville-Elgin, IL-IN-WI
County
Lake County, IL
Website URL
chargesyndrome.org/ 
Phone
(516) 684-4720
IRS details
EIN
43-1642150
Fiscal year end
December
Taxreturn type
Form 990
Year formed
1993
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G80: Specifically Named Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
California AB-488 details
AB 488 status
May Operate or Solicit for Charitable Purposes
Charity Registration status
Current - Awaiting Reporting
FTB status revoked
Not revoked
AG Registration Number
CT0227362
FTB Entity ID
None yet
AB 488 data last updated ("as-of") date
2024-11-06
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