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EIN 11-1971539

Cooley's Anemia Foundation

IRS 501(c) type
501(c)(3)
Num. employees
10
City
New York
State
New York
Year formed
1954
Most recent tax filings
2023-06-01
NTEE code, primary
G20: Birth Defects and Genetic Diseases
Description
The Cooley’s Anemia Foundation is dedicated to serving people afflicted with various forms of thalassemia, most notably the major form of this genetic blood disease, Cooley’s anemia/thalassemia major.
Total revenues
$2,306,555
2023
Total expenses
$2,165,404
2023
Total assets
$5,550,283
2023
Num. employees
10
2023

Program areas at Cooley's Anemia Foundation

Resarch grants - payments for medical research to enhance knowledge in treatment and eventual cure.
Patient services - blood for patients and direct patient aid.
Public information - general information for the general public: films, brochures, and legislative symposium for the medical profession.
To enhance the quality of patients lives while taking the necessary steps towards finding a cure.

Grants made by Cooley's Anemia Foundation

GranteeAmount
New York Blood Center (NYBC)$50,000

Who funds Cooley's Anemia Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
American Online Giving FoundationGeneral Support$65,067
American Foundation of Savoy Orders IncorporatedHumanitarian$50,000
Order Sons of Italy New York Grand Lodge Foundation$9,850
...and 12 more grants received

Personnel at Cooley's Anemia Foundation

NameTitleCompensation
Craig ButlerNational Executive Director$172,885
Jonathan DacuagOffice Manager and Finance Assistant
Mary WoldegiorgisNational Communications Director
Steve HemrajPatient Outreach Director
Zofia BuczynskiFinance Manager
...and 36 more key personnel

Financials for Cooley's Anemia Foundation

RevenuesFYE 06/2023
Total grants, contributions, etc.$2,284,539
Program services$0
Investment income and dividends$22,016
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$2,306,555

Form 990s for Cooley's Anemia Foundation

Fiscal year endingDate received by IRSFormPDF link
2023-062024-05-08990View PDF
2022-062023-04-28990View PDF
2021-062022-07-11990View PDF
2020-062021-05-11990View PDF
2019-062020-09-25990View PDF
...and 9 more Form 990s
Data update history
September 25, 2024
Updated personnel
Identified 2 new personnel
September 21, 2024
Received grants
Identified 1 new grant, including a grant for $9,850 from Order Sons of Italy New York Grand Lodge Foundation
July 31, 2024
Received grants
Identified 4 new grant, including a grant for $65,067 from American Online Giving Foundation
July 17, 2024
Posted financials
Added Form 990 for fiscal year 2023
May 18, 2024
Received grants
Identified 4 new grant, including a grant for $13,500 from Order Sons of Italy New York Grand Lodge Foundation
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsHeadquarter / parent organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchLobbyingNational levelReceives government fundingEndowed supportTax deductible donationsAccepts online donations
General information
Address
330 Seventh Ave
New York, NY 10001
Metro area
New York-Newark-Jersey City, NY-NJ-PA
County
New York County, NY
Website URL
thalassemia.org/ 
Phone
(212) 279-8090
Twitter profile
@cooleysanemia 
IRS details
EIN
11-1971539
Fiscal year end
June
Taxreturn type
Form 990
Year formed
1954
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G20: Birth Defects and Genetic Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
California AB-488 details
AB 488 status
May Operate or Solicit for Charitable Purposes
Charity Registration status
Current
FTB status revoked
Not revoked
AG Registration Number
005750
FTB Entity ID
0468580
AB 488 data last updated ("as-of") date
2024-12-04
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