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  4. Lumind Idsc Foundation
EIN 37-1483975

Lumind Idsc Foundation

IRS 501(c) type
501(c)(3)
Num. employees
20
City
Woburn
State
Massachusetts
Year formed
2003
Most recent tax filings
2023-09-01
NTEE code, primary
G20: Birth Defects and Genetic Diseases
Description
Lumind Idsc Foundation accelerates research, empowers families with education and support, and increases access to medical care for people with Down Syndrome.
Also known as...
Lumind Research Down Syndrome Foundation; Down Syndrome Research and Treatment
Total revenues
$3,159,544
2023
Total expenses
$3,979,523
2023
Total assets
$1,258,775
2023
Num. employees
20
2023

Program areas at Lumind Idsc Foundation

Ds-stn support medical research that will result in treatment to significantly improve health and independence in persons with down syndrome.
Community programs for treatment access equity, research awareness and participation, and for empowering families with resources, medical information, and research participation opportunities. Includes cost related to idscs my down syndrome community platform (mydsc).

Grants made by Lumind Idsc Foundation

GranteeGrant descriptionAmount
RAND Corporation (RAND)To Support Down Syndrome Medical Info$170,000

Who funds Lumind Idsc Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Valley Fund Charitable FoundationGeneral & Unrestricted$870,000
BrightFocus FoundationAlzheimer's Disease Research Related To Down Syndrome$65,000
Schwab Charitable FundHealth$57,000
...and 19 more grants received totalling $1,135,600

Personnel at Lumind Idsc Foundation

NameTitleCompensation
Hampus HillerstromPresident and Chief Executive Officer$286,161
Katherine O'NeillChief Operating Officer$94,103
Michelle PetronioChief Development Officer$162,311
Richard Fisher, PhDChief Scientific Officer
Kate O'NeillVice President , Marketing and Community Engagement
...and 14 more key personnel

Financials for Lumind Idsc Foundation

RevenuesFYE 09/2023
Total grants, contributions, etc.$3,191,064
Program services$0
Investment income and dividends$14,309
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$-46,621
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$792
Total revenues$3,159,544

Form 990s for Lumind Idsc Foundation

Fiscal year endingDate received by IRSFormPDF link
2023-092024-07-24990View PDF
2022-092023-08-04990View PDF
2021-092022-02-14990View PDF
2020-092021-08-16990View PDF
2019-092021-01-12990View PDF
...and 11 more Form 990s
Data update history
November 22, 2024
Updated personnel
Identified 8 new personnel
October 22, 2024
Received grants
Identified 1 new grant, including a grant for $5,000 from Teller Family Foundation
August 29, 2024
Posted financials
Added Form 990 for fiscal year 2023
August 28, 2024
Updated personnel
Identified 3 new personnel
August 25, 2024
Used new vendors
Identified 2 new vendors, including , and
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchFundraising eventsNational levelReceives government fundingCommunity engagement / volunteeringTax deductible donationsAccepts online donations
General information
Address
110 Winn St 105
Woburn, MA 01801
Metro area
Boston-Cambridge-Newton, MA-NH
County
Middlesex County, MA
Website URL
lumindidsc.org/ 
Phone
(781) 825-1300
IRS details
EIN
37-1483975
Fiscal year end
September
Taxreturn type
Form 990
Year formed
2003
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G20: Birth Defects and Genetic Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
California AB-488 details
AB 488 status
May Operate or Solicit for Charitable Purposes
Charity Registration status
Current
FTB status revoked
Not revoked
AG Registration Number
123533
FTB Entity ID
2565388
AB 488 data last updated ("as-of") date
2025-02-05
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