Program areas at NDSC
Ndsc resource center - the center is located in atlanta, Georgia, and serves as a National resource center for parents, professionals, and others seeking information about Down Syndrome. The center, which also houses the administrative offices for the Congress, is accessible via a toll-free phone number and web site, providing education, information, and referrals to interested parties. To further efforts to provide timely current information, the Congress also has a government affairs function. This function includes two representatives in Washington, d.c. who inform the membership of current legislative initiatives regarding Down Syndrome and related topics. The center also produces a quarterly newsletter, electronic newsletters, and periodic free webinars in english and spanish.housed within the National Down Syndrome Congress center, the ndsc center for outreach and education provides one-day seminars and conferences for parents, siblings and educators in locations around the country.
Convention - the Congress holds a convention each year at a different location in the united states with the purpose of educating parents and professionals, as well as self-advocates who have Down Syndrome, on current topics.
Who funds National Down Syndrome Congress (NDSC)
Grants from foundations and other nonprofits
Personnel at NDSC
Name | Title | Compensation | Date of data |
---|
Jordan Kough | Executive Director | $183,346 | 2022-12-31 |
Financials for NDSC
Revenues | FYE 12/2023 | FYE 12/2022 | % Change |
---|
Total grants, contributions, etc. | $984,736 | $579,694 | 69.9% |
Program services | $874,764 | $787,666 | 11.1% |
Investment income and dividends | $2,033 | $6,084 | -66.6% |
Tax-exempt bond proceeds | $0 | $0 | - |
Royalty revenue | $0 | $0 | - |
Net rental income | $0 | $0 | - |
Net gain from sale of non-inventory assets | $10,511 | $4,500 | 133.6% |
Net income from fundraising events | $59,632 | $23,293 | 156% |
Net income from gaming activities | $0 | $0 | - |
Net income from sales of inventory | $0 | $0 | - |
Miscellaneous revenues | $0 | $0 | - |
Total revenues | $1,931,676 | $1,401,237 | 37.9% |
Organizations like NDSC
Organization | Type | Location | Revenue |
---|
National Down Syndrome Society (NDSS) | 501(c)(3) | Washington, DC | $3,354,289 |
Lone Star Bleeding Disorders Foundation | 501(c)(3) | Houston, TX | $663,733 |
Global Down Syndrome Foundation | 501(c)(3) | Denver, CO | $3,826,365 |
Spina Bifida Association of America | 501(c)(3) | Arlington, VA | $2,834,510 |
Down Syndrome Association of Wisconsin | 501(c)(3) | West Allis, WI | $6,693,318 |
National Ataxia Foundation Incorporated | 501(c)(3) | Minneapolis, MN | $3,981,625 |
Adult Congenital Heart Association (ACHA) | 501(c)(3) | Media, PA | $2,407,696 |
Foundation for Sarcoidosis Research (FSR) | 501(c)(3) | Chicago, IL | $2,574,104 |
Massachusetts Down Syndrome Congress (MDSC) | 501(c)(3) | Burlington, MA | $2,115,140 |
Epilepsy Foundation New England | 501(c)(3) | Lowell, MA | $7,355,741 |
Data update history
February 5, 2024
Posted financials
Added Form 990 for fiscal year 2022
February 5, 2024
Updated personnel
Identified 1 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsHeadquarter / parent organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
Political advocacyConducts researchLobbyingFundraising eventsEndowed supportCommunity engagement / volunteeringProvides scholarshipsGala fundraisersFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
- Address
- 30 Mansell CT 108
- Roswell, GA 30076
- Metro area
- Atlanta-Sandy Springs-Alpharetta, GA
- County
- Fulton County, GA
- Website URL
- ndsccenter.org/Â
- Phone
- (770) 604-9500
- Facebook page
- thendscÂ
- Twitter profile
- @ndscÂ
IRS details
- EIN
- 51-0163631
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 1974
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G20: Birth Defects and Genetic Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Central organization
Free account sign-up
Want updates when NDSC has new information, or want to find more organizations like National Down Syndrome Congress (NDSC)?
Create free Cause IQ account