Program areas at Turner Syndrome Society of the United States
Programs consist of organzing national Turner Syndrome (ts) events for those with ts and their families, creating and maintaining ts content and resources, connecting people to information, sustaining the ts research registry and professional provider directory, and creating ts awareness. In 2021, we supported 2,500 individual requests for help, 20 support groups, 84,000 unique website visitors, 15,000 facebook followers, 500+ attendees of 52 webinars, 9 ts research studies, and reached 75,000 people during ts awareness month.
Grants made by Turner Syndrome Society of the United States
Who funds Turner Syndrome Society of the United States
Grants from foundations and other nonprofits
Personnel at Turner Syndrome Society of the United States
| Name | Title | Compensation | Date of data |
|---|
| Cindy C Scurlock | President and Chief Executive Officer | $90,729 | 2024-09-11 |
| Sarah Bauer | Board Chair | $0 | 2023-12-31 |
| Daniel Tompkins | Treasurer | $0 | 2023-12-31 |
| Brittani Laski | Board Chair | $0 | 2022-12-31 |
| Daniel Tomkins | Past Treasurer | $0 | 2022-12-31 |
| ...and 6 more key personnel |
Financials for Turner Syndrome Society of the United States
| Revenues | FYE 12/2023 | FYE 12/2022 | % Change |
|---|
| Total grants, contributions, etc. | $915,062 | $502,046 | 82.3% |
| Program services | $183,691 | $10,440 | 1659.5% |
| Investment income and dividends | $136 | $0 | 999% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $0 | $0 | - |
| Net income from fundraising events | $0 | $0 | - |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $8,663 | $5,183 | 67.1% |
| Miscellaneous revenues | $3,000 | $4,344 | -30.9% |
| Total revenues | $1,110,552 | $522,013 | 112.7% |
Organizations like Turner Syndrome Society of the United States
| Organization | Type | Location | Revenue |
|---|
| National Down Syndrome Society (NDSS) | 501(c)(3) | Washington, DC | $3,354,289 |
| flok Health | 501(c)(3) | Montclair, NJ | $369,785 |
| Global Down Syndrome Foundation | 501(c)(3) | Denver, CO | $3,826,365 |
| United Cerebral Palsy | 501(c)(3) | Vienna, VA | $2,223,432 |
| Williams Syndrome Association | 501(c)(3) | Newark, NJ | $2,421,502 |
| Cooley's Anemia Foundation | 501(c)(3) | New York, NY | $2,306,555 |
| Spina Bifida Association of America | 501(c)(3) | Arlington, VA | $2,834,510 |
| Hemophilia Foundation of Michigan | 501(c)(3) | Ypsilanti, MI | $3,941,132 |
| Batten Disease Support and Research Association | 501(c)(3) | Columbus, OH | $746,147 |
| Association for the Severely Handicapped (TASH) | 501(c)(3) | Washington, DC | $1,063,897 |
Data update history
October 21, 2024
Posted financials
Added Form 990 for fiscal year 2023
October 21, 2024
Updated personnel
Identified 4 new personnel
May 18, 2024
Received grants
Identified 4 new grant, including a grant for $12,000 from The Niner Foundation Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsHeadquarter / parent organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchNational levelProvides scholarshipsTax deductible donationsAccepts online donations
General information
- Address
- 12620 FM 1960 W A4 210
- Houston, TX 77065
- Metro area
- Houston-The Woodlands-Sugar Land, TX
- County
- Harris County, TX
- Website URL
- turnersyndrome.org/Â
- Phone
- (832) 912-6006
IRS details
- EIN
- 41-1596910
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 2001
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G20: Birth Defects and Genetic Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Parent of group exemption
California AB-488 details
- AB 488 status
- May Operate or Solicit for Charitable Purposes
- Charity Registration status
- Current - Awaiting Reporting
- FTB status revoked
- Not revoked
- AG Registration Number
- CT0230566
- FTB Entity ID
- None yet
- AB 488 data last updated ("as-of") date
- 2024-12-18
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